taylortotmom Posted August 8, 2007 Report Share Posted August 8, 2007 On the same note of fashion:You color coordinate your gatorade to your clothes- seriously, it's no accident that most of my wardrobe is chartreuse. It's a running joke because I ALWAYS have lime gatorade in my hand- might as well look cute Quote Link to comment Share on other sites More sharing options...
juliegee Posted August 8, 2007 Report Share Posted August 8, 2007 ...when you squat to pee in a public restroom and you get so lightheaded, you have to decide whether to fall backwards (yuck!) or forward (almost equally yuck!)Julie Quote Link to comment Share on other sites More sharing options...
taylortotmom Posted August 8, 2007 Report Share Posted August 8, 2007 Another one about good ol gatorade: You take pictures of what's in the trunk of your car before vacation because no one would believe how much gatorade a trip requires. I took 6-8 CASES (10 bottles per case) on our recent 4 day trip to Orlando- and a case of 20 bottles of water. I'll have to see if I can post the picture- it was hilarious- lol.Carmen Quote Link to comment Share on other sites More sharing options...
Lukkychrm42 Posted August 8, 2007 Report Share Posted August 8, 2007 Or another one on gatorade- sorry if someone's already said this:Whenever you travel to a foreign country you bring powdered gatorade just in case you can't buy it, and pray that customs doesn't think it's anything besides gatorade! Quote Link to comment Share on other sites More sharing options...
MrsMum Posted August 19, 2007 Report Share Posted August 19, 2007 How about:... when your 3 year old carries the 2.5kg bag of potatoes in from the car because she knows "it's too heavy for you, mummy"... when your 8 year old checks that you are ok in the bath... when your 10 year old makes you cups of tea because he knows that you can't lift a kettle, and is worried you'll get scolded... when you stop moaning about it not being the weather to hang washing out because you can't hold your arms up long enough to hang washing anyway... when you tell visitors that the kids are studying spiders webs for a school project because you have so many and are too ill to remove them... dust on the skirting board becomes a fashion feature as you dare not try to get down to wash it off... a good day for housework means you changed the toilet roll ... when you can just about change a pillowcase but forget the duvet cover... you go for a family scooter ride - the kids are superman scooters, yours is a mobility scooter... you decide it's a good day and walk rather than scooter, and old ladies with one stick get there quicker than you can with 2... you manage one bite of bread without aspirating and spending 20 minutes coughing to dislodge it... you are gradually reverting to a pureed or liquid diet because of the increasing swallowing problems... renowned specialists spend time explaining that "neurological symptoms often have a psychological origin" because whatever (you "imagine"!) you have does not show up on their tests... when you need to write a letter about your benefits and get as far as "Dear Sir" before feeling exhausted... when your GP wouldn't dare tell you it's psychological because she knows your husband used to be a psychiatric nurse... when you can't get DLA because nothing shows on any testscould go on for ages, but you know the feeling............MrsMum Quote Link to comment Share on other sites More sharing options...
Rachel Posted August 22, 2007 Report Share Posted August 22, 2007 ....you explain what dysautonomia is to everyone, even the random people in your dreams!I actually did this last night. I woke up to discover that I had just been explaining POTS and what severe fatigue is like to people in my dream!!! Quote Link to comment Share on other sites More sharing options...
pat57 Posted August 23, 2007 Report Share Posted August 23, 2007 The expression, "I can't get out of bed" is meant literally.You know how to take a fall.You don't care how people look at you-in line- when you start stamping your feet.Your pet resents it when you get out of bed.You wish you could take a nap on the toilet.Laundry is a full time job! Quote Link to comment Share on other sites More sharing options...
Tessa Posted August 23, 2007 Report Share Posted August 23, 2007 Nurses are this way everywhere, Nina... I got a similar experience... You know You have Dysautonomia when...after getting multiple readings on the hr monitor that indicate your pretty much dead, while you're still talking, the nurse proclaims "this one is broken", gets and new one, puts it on and gets the same reading, then says "this one must be broken too... Quote Link to comment Share on other sites More sharing options...
Tessa Posted August 23, 2007 Report Share Posted August 23, 2007 You know you have dysautonomia when...Your doctor writes an official Medical Report forbidding your teachers to take you to the Church because you pass out everytime you have to listen to the Mass standing... Quote Link to comment Share on other sites More sharing options...
persephone Posted September 27, 2009 Author Report Share Posted September 27, 2009 Just bumping this to cheer everyone up Quote Link to comment Share on other sites More sharing options...
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