Jacquie802 Posted August 28, 2006 Report Share Posted August 28, 2006 HI,Sorry, I don't mean to complain, but I feel as though I'm getting no where..... I feel aweful...my stomache is horrible, my head feels as though it's going to burst and I'm just soo tired and dizzy..My cardio never called back and I'm jsut running out of options it feels like. I've seen alot of specialists and it feels as though there is nothing left for them to offer me. Lately, I just feel very out of it, if that makes any sense..I hate to come here and complain because I know there are alot of people who feel worse off than I do...and I can't even imagine how you deal with it...... Quote Link to comment Share on other sites More sharing options...
Guest dionna Posted August 28, 2006 Report Share Posted August 28, 2006 i am trying so hard to think of something that would make you feel better but i just can't... either brain fog or sometimes there just isn't any magical phrase to help. i wish there was though. just stay positve. perhaps the cardio was just busy helping others and you will get a call soon. would that make you feel better? or maybe you could call--- if it would help ease some worry. just hang in there and i am sure it will all work itself out.dionna Quote Link to comment Share on other sites More sharing options...
goldicedance Posted August 29, 2006 Report Share Posted August 29, 2006 Have you explored the possibility that Florinef is triggering your headaches? While I am willing to try different things for my POTs, I will never again under any circumstances, take Florinef. It triggered massive long-lasting migraines causing lengthy hospitalization. Quote Link to comment Share on other sites More sharing options...
Jacquie802 Posted August 29, 2006 Author Report Share Posted August 29, 2006 I never even went back on the Florinef...My stomache is horrible and my headache seems to be subsiding...I had an aweful dizzy spell today...Quite the day for me. Quote Link to comment Share on other sites More sharing options...
DSM3KIDZ Posted August 29, 2006 Report Share Posted August 29, 2006 I can relate to how your feeling. I wish I had the answers for you. Right now I say just take it one day at a time and hopefully you'll be having a night out with your friends again soon.I hate when doctors don't call back. Mine was suppose to call a perscription in on Friday and still hasn't so now I don't have a new bb to start. They need to stop dragging their feet and do something to help us!!!You can vent anytime. No one knows exactly how your feeling because this illness is different for everyone but what your going through is bad for you and we can't fix you physically but we can be here so you can express your thoughts and hopfully start to feel alittle better.Hang in there sweetieDayna Quote Link to comment Share on other sites More sharing options...
Lulu Posted August 29, 2006 Report Share Posted August 29, 2006 sorry don't have any helpful answers for you, just watned to say "hang in there" and i certainly hope you feel better soon!! i have had docs not call back...it's such a lonely, frustrating feeling... well, you know you are not alone on this forum, if it's any comfort. i hope you get answers and relief soon.sending good healing vibes your way!! take care,lulu Quote Link to comment Share on other sites More sharing options...
mom4cem Posted August 29, 2006 Report Share Posted August 29, 2006 Hi Jacquie,I don't have anything wonderful to say, but we are here for support. Have you changed your diet that maybe anything could explain the stomach? I've had chest pains, which I know are from my stomach. Plus add to the weather, high humidity and rain by head and chest feel nice and full.Miserable. Any possibility you feel the same. Quote Link to comment Share on other sites More sharing options...
cardiactec Posted August 29, 2006 Report Share Posted August 29, 2006 i second this. florinef also depletes potassium (causes you to excrete it in the urine) and hence can cause arryhthmia disturances on top of our ALREADY rhythm problems! Quote Link to comment Share on other sites More sharing options...
Jacquie802 Posted August 29, 2006 Author Report Share Posted August 29, 2006 Ya, I don't really know what is going on with me...I have been having aweful palps today as well as dizziness....I can't remember if I took my last dose of Midodrine either Quote Link to comment Share on other sites More sharing options...
corina Posted August 29, 2006 Report Share Posted August 29, 2006 jacquiei am so sorry that you're having such a bad time. i wish i could do something to help you. i'm sending you ood thoughts and hope you will feel a little better tomorrow!corina oh, forgot for one moment that MY day is over (11pm here) but YOURS isn't even halfway! Quote Link to comment Share on other sites More sharing options...
nadine Posted August 29, 2006 Report Share Posted August 29, 2006 Jacquie-I was just wondering what you were taking for stomach pain, nausea? I know you were having a problem getting medication for this or some discussion about this in former post. Hope you have better days soon. Quote Link to comment Share on other sites More sharing options...
Miriam Poorman-Knox Posted August 29, 2006 Report Share Posted August 29, 2006 A thought. Do you have a pcp to direct stuff? My pcp is my "GATEKEEPER" I ask her to be sure that a new med is ok. That is so important. Miriam Quote Link to comment Share on other sites More sharing options...
AJVDK Posted August 30, 2006 Report Share Posted August 30, 2006 I just wanted to drop a line and let you know I am thinking about you. I also know what it is like to feel hopless when I comes to treatment. But keep fighting, and never give up, If you need to find another doctor. I found that my family doctor is the best thing. He keeps everything going, and deals with my cardio when we wil not call ! ( as for so reason they think they don't need to).Thinking of you! Quote Link to comment Share on other sites More sharing options...
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