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This is my first day on this forum... so, I'm new to all of this. I was diagnosed

with POTS in March 2005.

Recently, my doctor put me on beta blockers to try to slow down my heart rate.

I couldn't handle being on them. Too many side effects. I would rather deal with

the symptoms. I could at least function. On the beta blockers, I just wanted to

sleep and it seemed to lower my heart rate too much.

Since I'm pretty new to all of this I'm not sure what I'm supposed to be doing.

My doctor doesn't explain things very well to me. I go in with a list of questions

and come out more confused then ever and on another prescription of some sort.

My heart rate is high in the morning and gradually slows down as the day goes on

(all while I'm sitting). In the morning, it's usually between 80 and 90. By the time

I come home from work, it can be anywhere from 60 to 70. And then before I go

to bed, it is between 50 and 60. Is this something I should be worried about if

I don't continue taking the beta blockers?

Sorry if I seem clueless! Like I said, I'm new to all of this and am finding it

difficult finding sites to do some research myself. I've read some thing on this site

that have helped me out a lot.


micky2 :unsure:

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Micky, the frequently asked questions- "help yourself" section, pinned at the top of the forum, contains many links where you can access sites with accurate information on autonomic issues and related topics.


Also, with regard to finding previously posted info that's here on the forum, Melissa (sunfish) has put together a useful guide.



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Hi there,

Just wanted to say I'm new too. Not new to POTS, since I was diagnosed 3 years ago, but new to really understanding it, and taking part in message boards about the topic. I also have Celiac Disease and Colitis, and all my energy for the past 3 years has gone into mangaing those issues. Now I need to help myself to control this POTS stuff, since it is the most disabling thing in my life. Guess I'll be checking out that FAQ page, too.

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Guest dionna

just wanted to welcome you and let you know that we are here to answer any of those questions you might have... and the best part... i bet someone on here knows exactly how to answer any question... because we all have our different experiences.

take care of yourself, okay?

dionna :)

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Thank you all! My gosh, it feels so nice to be able to talk to people who knows what I'm going through!

My heart rate while standing never goes above 100 (that I know of). After making salt a huge part of my diet and taking Florinf, I feel pretty good (as well as I could). While on the low pressors, I felt worse. Very tired. I felt like I just couldn't get going to do anything. The headaches were the main thing. I had an awful headache every day. And my digestive issues got so bad. Since I've been off the low pressors, I feel better. The headaches are gone... I have some energy. But, I don't want to make my heart work harder than it has to. So, do I go back on the low pressors and feel bad? Or do I try to manage this with my diet or who knows what else? Can I control this with my diet (besides the high sodium... I got that going).

Reading other posts, I realize my heart rate doesn't make it up nearly as high as others. Will it get worse in time?

Reading the posts make me understand what my doctor is trying to do for me (seeing as she doesn't explain the whole picture to me). Thank you all again for your welcomes! I'm going to do some more research and read more posts. It's helping me so much.

Thanks again!

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