micky2 Posted August 25, 2006 Report Share Posted August 25, 2006 This is my first day on this forum... so, I'm new to all of this. I was diagnosedwith POTS in March 2005. Recently, my doctor put me on beta blockers to try to slow down my heart rate.I couldn't handle being on them. Too many side effects. I would rather deal withthe symptoms. I could at least function. On the beta blockers, I just wanted to sleep and it seemed to lower my heart rate too much.Since I'm pretty new to all of this I'm not sure what I'm supposed to be doing.My doctor doesn't explain things very well to me. I go in with a list of questionsand come out more confused then ever and on another prescription of some sort.My heart rate is high in the morning and gradually slows down as the day goes on(all while I'm sitting). In the morning, it's usually between 80 and 90. By the time I come home from work, it can be anywhere from 60 to 70. And then before I go to bed, it is between 50 and 60. Is this something I should be worried about if I don't continue taking the beta blockers?Sorry if I seem clueless! Like I said, I'm new to all of this and am finding it difficult finding sites to do some research myself. I've read some thing on this sitethat have helped me out a lot.Thanks,micky2 Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted August 25, 2006 Report Share Posted August 25, 2006 Micky, the frequently asked questions- "help yourself" section, pinned at the top of the forum, contains many links where you can access sites with accurate information on autonomic issues and related topics. http://dinet.ipbhost.com/index.php?showtopic=1954Also, with regard to finding previously posted info that's here on the forum, Melissa (sunfish) has put together a useful guide.http://dinet.ipbhost.com/index.php?showtopic=5555Nina Quote Link to comment Share on other sites More sharing options...
gillian502 Posted August 25, 2006 Report Share Posted August 25, 2006 Hi there,Just wanted to say I'm new too. Not new to POTS, since I was diagnosed 3 years ago, but new to really understanding it, and taking part in message boards about the topic. I also have Celiac Disease and Colitis, and all my energy for the past 3 years has gone into mangaing those issues. Now I need to help myself to control this POTS stuff, since it is the most disabling thing in my life. Guess I'll be checking out that FAQ page, too. Quote Link to comment Share on other sites More sharing options...
mom4cem Posted August 25, 2006 Report Share Posted August 25, 2006 Welcome. Plenty of help here on this board. Your heartrates don't sound high for sitting. How high do they get while standing? Quote Link to comment Share on other sites More sharing options...
corina Posted August 25, 2006 Report Share Posted August 25, 2006 hi micky,it's nice to meet you here (although it would be better if we didn't need to!). like nina said this site gives a lot of information. also you will find great people who are willing to answer your questions!corina Quote Link to comment Share on other sites More sharing options...
AJVDK Posted August 25, 2006 Report Share Posted August 25, 2006 Hello Micky,I just wanted to drop a line and say Hello and Welcome! Quote Link to comment Share on other sites More sharing options...
shannon Posted August 25, 2006 Report Share Posted August 25, 2006 Welcome to the forum!! Glad you found us. Hopefully the DINET resources will answer some of your questions. And you EVER feel like venting, just make a post or pm me!! Shannon Quote Link to comment Share on other sites More sharing options...
Ernie Posted August 25, 2006 Report Share Posted August 25, 2006 Hi,Welcome aboard.YOu will find many friends here.Enjoy the reading. Quote Link to comment Share on other sites More sharing options...
bttrflyamby1981 Posted August 25, 2006 Report Share Posted August 25, 2006 Hi and welcome.I hope you find the things you need to help you better understand your symptoms. Best wishes,Amber Quote Link to comment Share on other sites More sharing options...
Guest dionna Posted August 28, 2006 Report Share Posted August 28, 2006 just wanted to welcome you and let you know that we are here to answer any of those questions you might have... and the best part... i bet someone on here knows exactly how to answer any question... because we all have our different experiences.take care of yourself, okay?dionna Quote Link to comment Share on other sites More sharing options...
micky2 Posted August 28, 2006 Author Report Share Posted August 28, 2006 Thank you all! My gosh, it feels so nice to be able to talk to people who knows what I'm going through!My heart rate while standing never goes above 100 (that I know of). After making salt a huge part of my diet and taking Florinf, I feel pretty good (as well as I could). While on the low pressors, I felt worse. Very tired. I felt like I just couldn't get going to do anything. The headaches were the main thing. I had an awful headache every day. And my digestive issues got so bad. Since I've been off the low pressors, I feel better. The headaches are gone... I have some energy. But, I don't want to make my heart work harder than it has to. So, do I go back on the low pressors and feel bad? Or do I try to manage this with my diet or who knows what else? Can I control this with my diet (besides the high sodium... I got that going).Reading other posts, I realize my heart rate doesn't make it up nearly as high as others. Will it get worse in time?Reading the posts make me understand what my doctor is trying to do for me (seeing as she doesn't explain the whole picture to me). Thank you all again for your welcomes! I'm going to do some more research and read more posts. It's helping me so much.Thanks again! Quote Link to comment Share on other sites More sharing options...
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