tiger Posted August 17, 2006 Report Share Posted August 17, 2006 I have severe brain fog all day long, temporarily releived when I lay down. For me this is my worst symptom and does not seem to be getting better with treatment. I am currently taking lopressor, am on my 4th week now. It is doing a great job of controlling my heart rate, but my doc says once the lopressor controls your heart rate your brain fog and neuro symptoms should go away. I don't think so and I am getting very discouraged. I feel like I have a brain of a 90 yr old woman. Social situations are difficult for me because I feel like I am in space all the time. Also, I noticed my hair is falling out and my feet are Extremely cold of which I think is from the lopressor.Any advice, please help. Quote Link to comment Share on other sites More sharing options...
KellyErnst Posted August 17, 2006 Report Share Posted August 17, 2006 Sara,I had a lot of troule with brain fog. When do you take your lopressor - I only take mine at night. Also, I take provigal which has seemed to help with brain fog. I belief also the florinef has helped some too. As for the hair falling out I don't think that is happening to me - but I also take a prenatal vit. These are just suggestions you might try. I did a post on brain fog just a few weeks ago - you may want to look back at it for other posts.Good LuckKel Quote Link to comment Share on other sites More sharing options...
Lukkychrm42 Posted August 17, 2006 Report Share Posted August 17, 2006 Hi,my doctor just prescribed Paxil for me, to help with brain fog and concentration- especially since I start my senior year in 1 week! It does seem to be helping, and I'm not so much feeling like a zombie as I was, though I'm still counting on the drowsiness to go away.. Good luck!! Quote Link to comment Share on other sites More sharing options...
Kitsakatsa Posted August 18, 2006 Report Share Posted August 18, 2006 Provigil + Coffee. My brain begins to make new connections when I get that combination going. (then, they go away by the time I'm searching the grocery store for dinner, which is why I have 2,000 candles that I don't need). Quote Link to comment Share on other sites More sharing options...
tiger Posted August 20, 2006 Author Report Share Posted August 20, 2006 Thanks for the advice. Have you noticed any side effects to the Provigil? How long did it take before you started to notice a difference? Quote Link to comment Share on other sites More sharing options...
lthomas521 Posted August 22, 2006 Report Share Posted August 22, 2006 Sara, the brain fog might be related to poor circulation in the brain. Have you done everything possible to expand your blood volume (salt and water loading, plus Florinef or licorice)? Do you wear waist-high pressure stockings? Quote Link to comment Share on other sites More sharing options...
Kimba Posted August 22, 2006 Report Share Posted August 22, 2006 I just saw my POTS Dr. She said based on my heart rate, BP, syptoms, etc the reamaning brain fog I am experiencing is likely not due to POTS. (My fog has been 24/7 for 6 months since I first got sick.)I asked her about tests for brain circulation, etc and she suggested I cotinue to work with the headache specialist (neurologist) I am seeing for a wierd version of migraine that does not usually give me a pounding headache, but just a lot of other related symptoms. I am trying to get with him for next steps on this.If you have any migraine symptoms, think about maybe focusing on resolving those too. I understand how awful it is to feel like you are living on another planet all the time, so if you find something that works please let us all know. Quote Link to comment Share on other sites More sharing options...
sstephan Posted August 23, 2006 Report Share Posted August 23, 2006 My brain fog is the worst in the middle of the afternoon. I find it almost impossible to carry on a conversation and I just want to be by myself or lie down. Quote Link to comment Share on other sites More sharing options...
Kitsakatsa Posted August 24, 2006 Report Share Posted August 24, 2006 No real side effects to the Provigil. If I take 200 mg some days, I think my nausea increases. I start with 100mg @ 6, and it will wake me in one hour- just in time for work. I take the next @ noon and it will carry me through until about 10 pm before it drops me. Just enough to get everything done. I still feel foggy at times, but I have moments when I feel a clear breakthough (isn't it wierd?) and when that happens, I do all of my hard tasks at work that require clear decision-making. In the afternoon, I drink coffee. I'm convinced that without the two, I would have come close to making unwise decisions at work on some of my projects. Its a little pricey, but for me it pays for itself. Good luck. Quote Link to comment Share on other sites More sharing options...
hfollett Posted August 24, 2006 Report Share Posted August 24, 2006 Does your insurance cover Provigil? Mine won't, and I'm struggling with whether to pay for it outight or not. It really does help. If you are paying out of pocket for it, where is the least expensive place to purchase it?Thanks for the input,Helen Quote Link to comment Share on other sites More sharing options...
dano2718 Posted August 25, 2006 Report Share Posted August 25, 2006 Only speaking for my own experience, I have found strength training twice a week makes a huge improvement in the brain fog and fatigue. I feel much better than I did with Provigil - and it's a lot cheaper. It may not work in each case, but it seems to for me. I'm still going to fork out the $$ for my provigil script just in case the improvement doesn't last. Aerobic exercise seems to bring back the horrible brain fog, so go figure. Quote Link to comment Share on other sites More sharing options...
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