mrach Posted August 15, 2006 Report Share Posted August 15, 2006 Hi e.b., I had my MRi yesterday and they supect pituitary microadenoma ( my hormones are fine).My quetion is are there other people with microadenomas and POTs may be there is a connection Quote Link to comment Share on other sites More sharing options...
maggee Posted August 15, 2006 Report Share Posted August 15, 2006 hi!i do have one..dx'ed on mri jan. 2006.do not know yet==if it is related to pots / dsyautonomia symtoms i've had for years......as do not get to see pots specialist til feb. 2007 [dr. grubb in toledo,ohio].rechecking adenoma in december....to see if it is bigger.sometimes we have...and have had these for years...and they remain unchanged..so they tell me.they do not want to do anything for them......unless necessary clinically.i am anxious to know if any relation to dysautonomia===believe me!!please let me know if you find out the answer before i do!!!!!!i will post, if and when i get the answer.best of luck!!(((((hugs)))))Maggee Quote Link to comment Share on other sites More sharing options...
mrach Posted August 16, 2006 Author Report Share Posted August 16, 2006 Thank you, Magee. I asked because very often when I read the profiles of the people in the forum they have it listed as one of their Dxs, but you are the only one who responded...Iwill let you now as soon as Ifind outquote name='maggee' date='Aug 15 2006, 07:12 PM' post='61931']hi!i do have one..dx'ed on mri jan. 2006.do not know yet==if it is related to pots / dsyautonomia symtoms i've had for years......as do not get to see pots specialist til feb. 2007 [dr. grubb in toledo,ohio].rechecking adenoma in december....to see if it is bigger.sometimes we have...and have had these for years...and they remain unchanged..so they tell me.they do not want to do anything for them......unless necessary clinically.i am anxious to know if any relation to dysautonomia===believe me!!please let me know if you find out the answer before i do!!!!!!i will post, if and when i get the answer.best of luck!!(((((hugs)))))Maggee Quote Link to comment Share on other sites More sharing options...
dizzygirl Posted August 16, 2006 Report Share Posted August 16, 2006 well at this point i know i have something on my pituitary gland and my pineal gland.. one doc told me it was a cyst and recently i was told by a totally different doc that it was an adenoma.. so at this point for me the jury is still out.. but i'm hoping that i will have some concrete answers soon.. I do have hormonal/endocrine things going on.. so i think that it is affecting me..I however do not know if there is a link to dysautonomia or not.. or vise versa.. i do not know if one is feedding off the other kind of thing..i'l let you know if i find anything out.. good luck to you Quote Link to comment Share on other sites More sharing options...
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