marnian Posted August 8, 2006 Report Share Posted August 8, 2006 Last month, I was diagnosed with POTS and increased intracranial pressure with no known cause. The latter is also called pseudotumor cerebri and other names, but basically, it means your MRI/CT/spinal fluid looks normal other than the fact your opening pressure on a spinal tap is very high. Has anyone heard of these things being related? My doctors thought it was weird that 2 rare conditions appeared together since I was 23 and healthy/fit before this started, but they didn't know how to link them. On a side note, the way I ended up being diagnosed with both at the same time was that I saw my primary care doctor because my stomach was driving me crazy, she decided I was probably dehydrated and sent me to the ER. The doctors there admitted me because "something weirder was going on" and they ended up keeping me for 2 weeks, followed by a nursing home for 1 week. But I'm home now finally! Although reading your stories, it looks like I was lucky to be diagnosed so quickly. I have another dozen doctors appointments coming up so we'll see how that goes. Hopefully I can find the energy to make it through all that! Quote Link to comment Share on other sites More sharing options...
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