Guest CyberPixie Posted August 7, 2006 Report Share Posted August 7, 2006 I find if I try and do stuff even if it's just a shower by the end of the day I feel a bit hyper and restless, 'buzzy' inside and then I can't sleep.I highly suspect I have the adrenaline type of pots (can't remember what it's called). Fat chance of finding out, Dr's round here are useless and don't have a clue or want to help. As always we are the experts in our condition!What gets me though, is if I have any stimulants, they make me feel better!?! Quote Link to comment Share on other sites More sharing options...
Guest dionna Posted August 7, 2006 Report Share Posted August 7, 2006 i'd give you toast of stimulants then... if it works, it works! cheers to you! when i was on midodrine i felt wired all the time! no sleep, no appetite. nothing but go, go, go... go as fast as i can! so i can relate because of that.dionna Quote Link to comment Share on other sites More sharing options...
mom4cem Posted August 7, 2006 Report Share Posted August 7, 2006 Hi,I sometimes react to stimulants negatively and sometimes I can handle them and it relieves certain things for a while.I too, when I do too much, though too much could just be pulling a few weeds I can start to feel wired, hyped up and then I feel like a big rush and tachy will soon be coming. I guess I still have not learned when to stop, when enough is enough without pushing myself over the edge. Quote Link to comment Share on other sites More sharing options...
bttrflyamby1981 Posted August 7, 2006 Report Share Posted August 7, 2006 Hi,I actually find that stimulants make me crash. They work at first and then I'm so sleepy I nod off. I have had this happen driving, so I pinch myself or do something that hurts so I can stay awake. I don't recomend driving in this condition, but sometimes it hits unexspectedly. Take care,Amber Quote Link to comment Share on other sites More sharing options...
Guest danielvasel Posted August 7, 2006 Report Share Posted August 7, 2006 I find if I try and do stuff even if it's just a shower by the end of the day I feel a bit hyper and restless, 'buzzy' inside and then I can't sleep.same thing here... if I want to sleep at night, i can?t stand or sit for too long(meaning more than 15 minutes ) after 6pm...I highly suspect I have the adrenaline type of pots (can't remember what it's called). Fat chance of finding out, Dr's round here are useless and don't have a clue or want to help. As always we are the experts in our condition!i might be way off, but i think it?s called "hyperadrenergic"... please someone correct me if im wrongWhat gets me though, is if I have any stimulants, they make me feel better!?!what kind of stimulants? natural ones like tomatoes? or things like red bull?talk to ya later cybepixie... Quote Link to comment Share on other sites More sharing options...
Guest CyberPixie Posted August 8, 2006 Report Share Posted August 8, 2006 "hyperadrenergic" Yes, I think that's what it's called.Tomatoes?! Well, caffeine seems to help me, in the past I used something with a really long name that began with P for sinus problems that is a stimulant and I felt almost normal after taking it for 3 weeks. Also accidentally being given adrenaline in a local anaesthetic for dental stuff, again I felt almost normal. I've asked a specialist about it, but he didn't give me an answer whether I could try a stimulant. What worries me is getting tachy through taking something like that. Quote Link to comment Share on other sites More sharing options...
Lulu Posted August 8, 2006 Report Share Posted August 8, 2006 could it be pseudoephedrine? it's the stimulant in "sudafed" type decongestants. i used to have the same reactions you are speaking of to stimulants....caffeine, nicotine (hey i quit 9 months ago!) the decongestant i just mentioned, and to activity. then i would find i felt like i did before i got this dysautonomia stuff. it was great! i would feel all kinda-hyper and buzzy and happy, like i could think better and i just felt better. i thought, "hooray, problem solved!!" HOWEVER (darn it, there's always a "however" with POTS ), my heart rate was actually escalating all these times, along with my BP (and i wouldn't even know it, because i felt "fine" just buzzy and wired and getting so much done) and then CRASH!!! i would pass out seemingly out of the blue. i have been told since that when my body reached a certain level of overstimulation of the sympathetic nervous system (your "fight or flight" stuff) that my body would basically go, "Oh no you don't even!" and then begin a shutdown before my BP went even more dangerously higher.i never realized how high my BP was actually getting until i started nursing school. i was drinking pepsi's and took sudafed for my allergies and smoked at that time so, i'm feeling OK, and we're learning to take BP's on each other....and mine was like 240/160ish or something, HR in the 120+ range. and my schoolmate looked at me like she had done it wrong and got our instructor (an M.D. for our H&P course) and he took it. still up in that range. and he was like, "do you need to go to the ER?" i told him i felt fine. (but it scared the crap outta me!) later that day i had yet another total crash out. this continued until it became apparent that i was really having more and more BP problems and more and more syncope problems. i eventually had to leave the school and took six months to recover, part of which was no more stimulants!! certainly not like i'd been using them. (i still eat chocolate, i'm a woman, after all. but just little bits....moderation and all that)my point is, and sorry this is soooooo long. (i need an editor!) is that it worked for awhile, but in the end it did me more damage than good, and i couldn't even tell, because i was feeling good. i also have the hyperadrenergic form of POTS and we can't take care of ourselves in the same way other POTSers do. dr. grubb told me that the medical community should have named hyperadrenergic POTS something else because the treatments for it are sometimes the exact opposite of what the other kinds of POTS are. i told him why don't you call it "anti-POTS" and he laughed, said that would be a better name than what we have.of course, if it is working for you, have at it, i say! we are all different. i just wanted to share what happened with me, it sounded similar to others' experiences and i hope what happened to me won't happen to you or anyone! yuck!! best wishes, cyberpixie, and peace, lulup.s. i now find i have to limit my activity in the evening or i'll be to keyed up to go to bed, even with Klonopin and Ativan on board. then the insomnia makes me more hyper and so it goes....into another cycle. Quote Link to comment Share on other sites More sharing options...
Tanzanite Posted August 8, 2006 Report Share Posted August 8, 2006 My new name is Tanzanite! Pseudoephedrine, that's the one! That doesn't sound good what happened to you (hugs). I haven't taken it for a few years, too worried the tachy will go into overdrive! Quote Link to comment Share on other sites More sharing options...
Lulu Posted August 8, 2006 Report Share Posted August 8, 2006 woooooooo, tanzanite!!! it's so sparkly and pretty!! hey--i've heard in some circles if you take a name that has healing properties (tanzanite is supposed to), it will make you well.... so with that theory we could have a massive name changing?? heck, that might work as well or better as some of the things "doctors" have told me!!! you'd be our trendsetter, leading us to a new age LOL !! you go, girl! [now i have to think of cool new name too>>> health ninja ? just kidding! woke from nap in silly mood, sorry ] i love your new name! everyone needs a change now and again & who knows, maybe there's something to that saying i heard?? yeah, watch out for that sudafed stuff!! nasty!! i hope you can find your "balance" and continue to do better and better! (hugs) back at 'cha take care, tanzy!!peace, lulu Quote Link to comment Share on other sites More sharing options...
Tanzanite Posted August 9, 2006 Report Share Posted August 9, 2006 You do make me laugh lulu! Who knows, maybe it will help, need all the help I can get!Perhaps you should be Diamond as you get people sparking off you and make people smile. Quote Link to comment Share on other sites More sharing options...
Lulu Posted August 9, 2006 Report Share Posted August 9, 2006 so would that make me "Lu Diamond Phlilps Screwy Driver"? it does have that certain, what the french call, "i don't know what." definitely at the top of the running, and it beat out "health ninja" in a recent poll (of myself) by 2 to 1. i obviously need some sleep!! ack! (and hey thanks for the nice compliment. you make me smile too ) Quote Link to comment Share on other sites More sharing options...
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