Deb Posted May 28, 2004 Report Share Posted May 28, 2004 I don't understand why, but some days the pooling in my legs is MUCH worse than usual. Like today, a few minutes after I stand up I can feel the blood pooling and then my legs ache and I have pains all up and down them, and I quiver slightly. Then I get this headache behind my right eye. I understand the pooling and the pains, but I also have trouble breathing. It's like tiny spasms in my diaphram, and I feel like I can't quite catch my breath. It was worse today then it's been since I was dx with POTS. My blood pressure and heart rate are remaining pretty constant. I wear compression hose because if I didn't, I wouldn't be able to walk. I'm not on any medications right now except my allergy/asthma medications and Zoloft. I had been on midodrine and florinef but had to stop because of side effects.I saw my cardiologist and my neurologist on Monday, and they didn't know what the cause of the breathing problem could be other than it is probably related to my asthma. But the inhaler doesn't relieve it so I'm a little skeptical about that. Plus, I've lost almost all of the hair on my arms, and the hair in my underarms and on my legs is very sparse and is growing very slowly. I only shave once a week now. Plus, my periods are weird. I start spotting days before the actually flow starts, and then I spot some a day or two after I've stopped.Any ideas? Anyone else have any of these symptoms? Quote Link to comment Share on other sites More sharing options...
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