rdslots Posted July 30, 2006 Report Share Posted July 30, 2006 I tried to ask, unsuccessfully, if any of you are/were aware of any efforts to get our concerns, as sufferers of dysautonomias, before members of Congress. Please understand that I am not soliciting anything here, other than information of how to better organize ourselves, under an 'umbrella of fellow autonomic disorder sufferers,' and get information out to others.I really don't think it much matters what we call ourselves, or what organizations we say we represent, but if we start by writing our own Congressmen, even if it is only as individuals, can it not make a difference? Sign me, Clueless Here Quote Link to comment Share on other sites More sharing options...
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