arh0006 Posted July 28, 2006 Report Share Posted July 28, 2006 I went in for a follow up with my autonomic doc the other day and left with a possible diagnosis of Pure Autonomic Failure. I was shocked when he mentioned it. I explained that I had new symptoms regarding my bladder. Namely incontinence, having to strain to pass any urine and just plain not being able to go to the bathroom even though I could feel that I had a full bladder. I also informed him that I wake at least 4 to 5 times a night to go to the bathroom. In short the doc said he felt I have a neurogenic bladder. As such given the host of other symptoms I have he felt I was now a candidate for PAF. I am only 28. I am not ready for this. He said he will put me on Zoloft soon and at this point I am welcoming the idea of an anti-depressant. Researching on the internet I found the medical prognosis associated with PAF and it is not very pretty. The most alarming aspect is that it can acutally reduce your lifespan. One article stated many only live 20 years following a PAF diagnosis.I have written all of this to ask other members about their knowledge of PAF. I want to gain a real understanding of what I should be expecting with PAF and whether it can indeed shorten one's lifespan. I guess I just want to know the truth about what I am facing. Quote Link to comment Share on other sites More sharing options...
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