futurehope Posted July 27, 2006 Report Share Posted July 27, 2006 I notice frequently that when I measure my BP the difference between the systolic/diastolic is less than 40.For example, 120/80 is "normal". Well, I hardly EVER have 40 points difference in the numbers. It's usually 34 points different. When I'm really bad off, the numbers are even closer together.Well, the internet look-up of this said this is called the "pulse pressure" and that a "low" pulse pressure is indicative of shock and low perfusion (getting of oxygen to the organs). Dah!!!!!Obviously, I have low perfusion to the brain (make that, it's difficult to think or I don't even want to think). And in my everyday life I often feel like I'm in mild shock (no blood up there where I need it).I already know I have decreased blood volume (via testing), so ......Does anyone else notice this?What do you all do about this? I guess the florinef (if I took it) is supposed to help with this, right?What is one to do?Just wondering??? Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted July 27, 2006 Report Share Posted July 27, 2006 It's called "low pulse pressure" and it's very common with those with dysautonomia Quote Link to comment Share on other sites More sharing options...
futurehope Posted July 27, 2006 Author Report Share Posted July 27, 2006 Thanks, Nina. As you can tell by my post title, I have already found the name for this.Well, at least I know I'm not the only one. I'm going to ask my doctor (when I see him in October) if this is usually treated.How did you find out this is common? Did I miss something in the description of this ailment on this website? Quote Link to comment Share on other sites More sharing options...
Jacquie802 Posted July 27, 2006 Report Share Posted July 27, 2006 I also have low pulse pressure when I am most symptomatic.Jacquie Quote Link to comment Share on other sites More sharing options...
Dizzy Dame Posted July 27, 2006 Report Share Posted July 27, 2006 Me too. When I stand my pulse pressure is super low, sometimes there's only a 10 point difference between the two numbers!Don't know why... Quote Link to comment Share on other sites More sharing options...
ariella Posted July 27, 2006 Report Share Posted July 27, 2006 dittowhen my dysautonomia was at its worst, I've had a pulse pressure of only 5 to 10 points diff. Not pleasant. Felt like I was fading out of this world. Happy to still be here! Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted July 27, 2006 Report Share Posted July 27, 2006 I also experience this on days when I feel unwell, and happen to see or know my bp there is a smaller than normal difference between sys and diast--even on more normal days, I can experience this.This has been discussed before on this board:http://dinet.ipbhost.com/index.php?act=ST&f=1&t=2868http://dinet.ipbhost.com/index.php?act=ST&f=1&t=2118http://dinet.ipbhost.com/index.php?act=ST&f=1&t=2142 Quote Link to comment Share on other sites More sharing options...
Sophia3 Posted July 27, 2006 Report Share Posted July 27, 2006 Yes pulse pressure changes are normal with this crud. Mine can be 50 points apart or 10. This true on rotten days as hypovolemia issues make it hard for blood to circulateThis site explains it briefly 2/3 down the page or so.http://www.anapsid.org/cnd/diagnosis/oi.html Quote Link to comment Share on other sites More sharing options...
BEE Posted July 27, 2006 Report Share Posted July 27, 2006 Very common I either have a real high pulse presure or a real low one... Quote Link to comment Share on other sites More sharing options...
futurehope Posted July 27, 2006 Author Report Share Posted July 27, 2006 You guys are great. Thanks for the references. I especially enjoyed the CFIDS article.Now..........I just have to adjust to the fact that there are several different body systems of mine that are unreliable and unpredictable on any given day. And it's really difficult to find a consistant help for all this. Sheesh!You know what? I think we all deserve some sort of heroic medal for having to deal with all this on a routine basis. Quote Link to comment Share on other sites More sharing options...
ellepee Posted July 27, 2006 Report Share Posted July 27, 2006 I've also found the difference between mine to range from 10 to over 50. I've mentioned it to my doctor before and he told me it was nothing to worry about....told me just to worry about the systolic. Quote Link to comment Share on other sites More sharing options...
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