Beccapooh Posted July 26, 2006 Report Share Posted July 26, 2006 Okay, so where to begin. I went to go see my Cardiologist today regarding my (supposed) DX of MVPS. Well, gee, I drove for the 45 minutes, burned a quarter of a tank of gas (no cheap matter these days) and paid my $30 copayment (for a specialist mind you) and only got to see her PA. Now, normally, this wouldn't be an issue (I suppose), however, the appointment was SUPPOSED to be to review my echo (actually look at it!!) and start me on a treatment plan. Well the PA walks in with a little plastic board with a picture of a heart on it, directs my attention to the Mitral Valve and says "This is were your prolapse is. Do you know what "prolapse" means?" I, of course, say yes and she continues with, "Okay, do you have anymore questions?"Ummm, wha??? We were done. (According to her, we were, I thought differently) That was it, the entire appointment??So, I of course, said, "Yes, I do." I went on to explain about MVPS and that it was also called Dysautonomia, etc. I spent the next 45 minutes educating her and being told that I needed to see a Neurologist (even though I've been seeing a Neurologist off and on for 16 years now! ) because she thinks that I have MS and/or absence (spelling?) seizures. Okay, well, let's see, I've done about 27 MRI's (exaggeration) most with contrast even though I have a horrible reaction to it. I've also done the 48 hour EEG thing, where I wore the electodes on my head and freaked out all the neighborhood children. Nada. Well, except for the T2 lesions and an abnomality of the anterior horns, which was never followed up on at all. I was told hat I had six lesions and to have MS, I needed 9. Whatever. Anyway, suffices to say, I don't have MS or these weird "asbence" seizures. I have freakin' DYSAUTONOMIA you stupid *&%$@!!!!I have 18 years of records pointing in that direction. I asked her if she'd order me a 24 hour urine or the Cateclomine (however you spell it) test and a colagin (again spelling's off) test. I've got a sneaky feeling that I have Hyper adrenic Dysautonomia and Vascular EDS. These two tests will conclusively (kinda) tell me if I'm right or not. She told me no. She told me to go see a Rheumotologist and an Adrenal guy. Okay, well let's see I've been to every freakin' other "ologist" why not add two more, huh?? Or hey, maybe you could actually help me out and save me the time and money and just order the tests? Nope. Point blank.Then she went on to say that IF I did have an "adrenal" problem that that would explain my weight gain. What weight gain? I've been fat since I gave birth to my first child 8 1/2 years ago. I know that I'm fat. I've weighted within 6 lbs of the same weight for almost nine years. (Except for when I was pregnant with the second baby, of course!!). So, now, again, I'm being told that I'm ill because I'm fat. Okay. Whatever.Then she continues to say that if I'm not having absence seizures and since she "KNOWS THAT I DON'T HAVE POTS......" (even with a 28 beats per minute increase in HR) that I must be a very good actress!!! Okay, at this point, I want to hit her, but I think, no..........just wait, the wonderful, kind hearted cardiologist will come in any second and save me. She's getting ready to dismiss me without any drugs, nothing. So, I pretty much demand at least Beta Blockers, which she gave me "if it would make me happy." she said. Nice. Don't do me any favors, okay??!!! And as she leaves she tells me to get dressed. No EKG, no seeing my echo and no cardiologist. I'm thinking, okay, I'll get dressed and wait for my doc. So I waited for 20 minutes and then the nurse comes and knocks and the door to see if I'm okay. She says to me "we're ready to check you out now." Oh, really? When was I checked in, huh???So I get my script for the Beta Blockers, something with T, I don't even remember right now, some XL thing that I'm to take a night and a standing order for antobiotics for when I have surgery, dental work, etc.So over the course of this appointment, I was told that MVPS doesn't exist (she'd never heard of it, so it must not be real, kinda thing), that I'm too fat to be sick, and that I'm a good actress!! Well, y'all say hello THE FAT ACTRESS. I'm going to go shoot myself now!!!!!!!!!!!! (Not really, but, I'm so upset I can't even see straight, no really, I can't see straight.................ARGH!!!)Bec Quote Link to comment Share on other sites More sharing options...
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