MightyMouse Posted July 17, 2006 Report Share Posted July 17, 2006 Hi everyone, I wanted to share a neat little thing with you. Today I went on a quick trip to a local doctor's office to drop off some handmade bracelets she's bought from me. Because it's sooOOoooo hot here today, I wore my CoolSport vest--and tacked my Ehlers-Danlos National Foundation pin on it too. I've previously promised my cardio I'd be careful about driving in the heat, so I knew how much the vest would help, especially getting back into my car after waiting, while it baked out in the 100 degree heat.Anway--I was waiting with all the patients for a good half hour with 3 other adults, all of whom were staring at me at various points, I'm sure trying to figure out what the heck that vest was about. Even some of the staff, including a PA were staring at me on and off.Then a mom and 2 elementary school aged kids came in--and as soon as the 10 year old boy sat down, he looked right at me, pointed at my vest from across the room and said "What's that?" I explained what it was and that it kept me cool. Then he asked "Why do you need to wear it?" And I explained that too, as simply as possible, saying that I couldn't cool my own body, and that it kept me from getting overheated. Then he asked if I was "always like that?", and I told him "yes". He was so cute, looked right at me with a sad face and said "I'm sorry that you have that." !!! How cute, a kid of 10 give me more empathy than most grown ups.Anyway, I thanked him and told him it's okay, that I'm not sad and that it's just the way my body works. Then he and his 7 yo sister wanted to know if the vest was heavy so I took it off and let them try it on. What was really funny was now that he'd opened the door to the conversation, all the grownups started asking me questions! One asked how I got diagnosed, another said she'd heard of EDS and wanted to know if I have heart issues in addition to the temperature problems. I felt like I was giving a POTS, NCS and EDS lesson. Weird thing about the EDS question-- the lady next to me has a neighbor who has EDS, as does his son, so she knew exactly what I had and that's why she asked about heart problems! Also, I could tell the office staff was listening in too--so maybe the PA and nurses learned something? I had DINET brochures in my car, but I decided just to leave it as is for today Just thought I'd share something good today. Nina Quote Link to comment Share on other sites More sharing options...
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