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Chronic "ruptured" Blood Vessels??


Guest sonotech
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Guest sonotech

For about a year now I seem to have problems with "ruptured" blood vessels. It is NOT caused by trauma to that area.

I can be walking along doing nothing and one with rupture in my hand or finger. Yesterday it happened in my ankle when I moved my foot quickley to prevent something from falling on it, but my ankle DID NOT hit anything.

I get these about once a week, and they hurt, swell, and cause bruising. Does anyone else have this problem, and if so, what could be the cause?

It really concerns me because I worry that other blood vessels (more major ones) could also be weak, and I did have an "unexplained" episode of internal bleeding last year.

Thanks everyone!!

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You really need to get this addressed with your doctor. One possible cause could be EDS, but again, without a doctor checking into it, it's really impossible to say why it's happening to you. Please contact your doctor asap.

Nina

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Just came onto posts and couldnt believe what I was reading !!!!! :o

I have been having these for some years now .

At first in my fingers , oh ! do they hurt when they go , I dont know about you but I seem to get tingling in the part thats going to go first , then a burning sensation and then 'bang' it bursts ............it has been very bad at times and once my whole finger filled up with blood and went as stiff as a board . :(

I was told to apply pressure when the vessels burst to try and control the bleeding ..........well thats alright but the last one I had was in my TOUNGE :) boy ...oh ...boy did it hurt , you try holding your tongue and not dribble down your arm at the same time :huh:

My own doctor is so worried now that I have been put onto aspirin each day just in case another big one goes ( the tongue one was rather large and half my tongue went black/red / blue !)

I dont know what to suggest I thought it was just me who had this strange' happening ' but obviously it isn't .

I have had Autonomic problems for over 30 +++ years and as time goes on it does appear that I'm having more odd things happen to me .

I do hope you can get some answers from your own doctor , it may be advisable to mention that you know someone else with this problem who has the same underlying condition as you and that hers is getting worse , also you could mention the aspirin .

Good luck and I do hope they stop , there not very nice at the best of time .

Willows.

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Guest dionna

that scares me! no suggestions cause it hasn't happened to me so i have no experience. wow i would think that would be a worst symptom. check it out with a doc and willows asprin advice sounds good to me. i feel bad for you and willows. usually i don't feel bad for anyone on the forum because i have the same problem so it is more of a sympathize because i have been there too but not on this one. i am very thankful that hasn't happened to me (another blessing to count) and i really hope that you get this issue resolved as soon as possible. it sounds extremely awful! i wish you the bestest of luck. let us know if you get help. i will pray for you.

dionna :)

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Not sure if I'm having the same thing or not. I have never bruised easily, ever. And now I just counted 17 bruises on one leg.

I'm not sure mine aren't just from bumping into everything or not. But as Nina said, off to the doctor with you!!!! morgan

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I must admit that when I saw sonotech's post I was surprised as I have never heard of anyone else with this problem, and put it down to the fact that I've had my condition so long that its something you get may be in the later stages , just another nasty thing that happens as your veins get weaker.

I do find it strange though as most of mine go in my hands and you can see after the blood has gone ( about a week ) the tip of the vein on the surface of all the ones that have gone in the past.

I find it very annoying , a bit scary and rather painful..................... :)

My doctor put me onto aspirin because of the bleeding , but as well the veins bursting a few weeks ago the whole of my left side was in pain ( neck, shoulder, arm, hand, hips, leg foot) and became weak for a week or more , having had a really had episode of high blood pressure twice now her concern is that I dont stroke or have a heart attack.

Yes, I am aware that aspirin thins the blood so I am more incline to bleed more if cut and I remembered to tell my surgeon last Wednesday to enable him to compensate by giving me adrenalin . :)

But I look at it this way , I'd rather bleed more and have to have a blood transfusion than have a blood clot hit my brain ( what brain ) or my heart .............there's no choice.

I to bruise 'for no reason' and sometimes I look like I've been in a fight when all I've done is lay on the bed for a few days, so I take rather large amounts of vitamin C every morning and evening a 500mg tablet.

As this is a soluble vitamin any excess is just sent out via your bladder so you can't overdose on it .

Hope your doctor can through more light on it than mine could , it does appear that your medical care is far superior than that in the UK lucky things !!!!

Best wishes and keep you chin up ( old UK saying meaning keep smiling , dont let it get you down ) also keeping you chin up saves the dribble running off your elbows if your tongue goes :)

Willows.

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this problem have a name. my son had this when he was 5. the state and doctor thought we were beating him.find a good doctor for blood testing.and nergolist.he was put on meds and a specal diet and was better in 3 week he is 20 now. hope things get better soon.

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Guest sonotech

Thanks for the replies!

The sad thing is that I have mentioned this problem to EVERY doctor I see, and they ALL just "shrug it off". It really bothers me because I DO have EDS, but have never been diagnosed with the "vascular" form and wonder if I may have it afterall.

Willows,

I have had dysautonomia symptoms for about 20yrs (thats as far back as I can remember). I am not sure if sx duration could cause this. I think there are many others on this forum that have had sx for at least 20++ years and don't have this.

I just wish docs would take OUR concerns SERIOUSLY.....(before they kill us)!!!

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If you've not gone over to the eds website ( http://www.ednf.org/ ), you might want to check out what they've got online regarding types and diagnosis. Also, I'm a member, so I have access to some of the resources that aren't public, like the physician listing. PM or email me if you need something.

Nina

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I'm going to check out the web site mentioned by mightymouse .

I have for years been asking doctors and consultants 'what is it' and like you sonotech I just get 'I dont know' . The problems is that in the UK trying to find an answer to the question can eat up some of the money designated for 'more important issues' ..............so I dont stand a chance !

If I had private medical insurance and unlimited funds I'm sure the doctors would spend months searching this problem , but as I have neither its 'you got it and put up with it '.

Sad in a a way , but thats life , it took me all these years to find out that the main condition was so a lesser but more painful one doesn't stand a chance .

Willows.

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Guest Julia59

Sonotec,

I would see an EDS specialist----you may already have.

The Cincinatti Childerns Hospital has a good one---Dr. Wenstrup. He is an EDS specialist/cardiologist.

On Oct. 4th I have an appointment to see him and another cardiologist---and an EDS genetics specialist.

Cincinatti is only about a 3 1/2 hours drive from Toledo. An EDS specialist can rule in or out the vascular type. I have been told I'm a bleeder by three different doctors, including two surgeons----whatever that means. One did major surgery, and the other two did minor surgical procedures.

I'm told varicose veins are common with EDS, but can't remember what type----possibly the vascular. I do have varicose veins towards the bottom of my legs.

What made me decide to go see a specialist was talking with another person with EDS who recently came to Toledo to see Dr. Grubb. Actually I talked with another person locally also---someone in their 50s---(she is the one that told me about Dr. Wenstrup, and the EDS clinic). Although I was already diagnosed with Joint hypermobile EDS in NY, and the Cleveland Clinic---it wasn't done by specialists. One was a NSG, and the other a Physical Medicine MD----I'm sure they know what they are doing, but I feel better about seeing a specialist.

I wouldn't wait long with something like that going on.......... :)

Here is the link to the EDS clinic in Cincinatti....

http://www.cincinnatichildrens.org/svc/alp...ent/marfan-eds/

Hang in there,

Julie :0)

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Guest sonotech

Thanks Julie,

I will check out that link. I have not seen a "specialist" I suppose. I see a rheumatologist that deals with all types of different conditions.

It gets so frustrating having to do all the "leg work" just because docs don't take our concerns seriously. Would think we would be used to doing that, but it gets so tiring.

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