Balance

[nadine]

I have great difficulty with balance and wondering how many out there do as well??? Is this a major symptom for you??

I was diagnosed with vestibular disorder, a year ago, but it hasn't improved, even with rehab. I have been sent to many specialists, neuro, etc. No clear answer yet.

Can POTS be playing into this, I have felt from beginning it was realted to poor blood flow.

Thanks for any responses.

[corina]

hi nadine,

i have balance issues as well, and it varies from hour to hour. there are times that i can?t walk at all and times )usually during the late hours of the evening, if i?m still up) when my balance is almost normal. i don?t have a clue why but maybe it has to do with bloodflow, just not sure about it. nobody knows so i don?t have an answer.

corina

[MNsue]

when my POTS is bad my balance is also bad. I also get more weakness on my left side, and have noticed that walking up down stairs is more tricky when I have had a bad POTS night.

I wish I could tell you why this happens. My MRI's and EMG's are all normal.

However, I have had good weeks where my balance is good enough to ride a very old and and reliable horse.

Does your balance issues come and go with your POTS ups and downs.

Rhonda

[Lukkychrm42]

I have balance issues, but mainly in the morning and at night. Otherwise, I'm kinda clumsy, but I couldn't necessarily categorize it as thinking there's something wrong with the equilibrium... I guess that's about all I'm able to connect to balance issues right now, although there must be other causes, too!

[yogini]

Yes, I went thru the same thing with rehab, and my symptoms came back. Mine was definitely related to POTS. It used to be my worst symptom, but has gotten a lot better over time.

[cmtaylor5]

I had disequilibrium and felt off balance when my POTS symptoms were at their worst. It disappeared as I improved.

Carolyn

[nadine]

Thanks for the responses. This gives me some hope that it may improve with time. I was doing a little better for a few weeks, but it has increased again. Very frustrating and difficult to think it isn't something neuro related. They just aren't sure at this point.

Thanks again---------

[bttrflyamby1981]

sorry late response,

But I too have balance issues...it is not uncommen for me to run into things or hurt myself because I scrape myself with objects (like doors ect..) It gets better for me in the later hours...

Good luck,

Amber

[sstephan]

I too have problems with balance at times. I can't balance my bike if my daughter is in her seat on the back of it. I can no longer ride with her because I fell not too long ago with her in the seat. (she was fine thank God) Sometimes I have problems with peripheal vision too.

[Jacquie802]

Hi,

I also have balance disorders. It was at it's worst last summer. I had all sorts of vestibular testing done...The docs think I may have had a viral infection in my ear or something like that.

I am alot better now in the balance area, but still have days when I feel like I am going to fall over.

I hope the docs get to the root of the balance prob. It really is bad to deal with.

Jacquie