Deb Posted May 18, 2004 Report Share Posted May 18, 2004 I haven't written much in the last week. After April told me about the BP cuff, I went that afternoon and purchased one. It is great! I can take my BP whenever I feel a little funny, and it takes my heart rate, too. This has been such a help! I suspected the midodrine was making my BP too high, and I was right. I no longer take any. In fact, I wrote my Doctor an email about the BP and cutting out the midodrine, and he said that I probably can cut back on the Florinef, too! I am so happy about this! I see him and the cardiologist, that several of you recommended I see, next week. That horrible chest pressure is gone, and my breathing is greatly improved. PLUS, I have been sleeping so much better! I knew the midodrine was causing a lot of side effects, but I'd forgotten how good I could feel. If I could go back to when I was so terribly sick and choose to take the midodrine or not, I would still take it. It gave me back a semblence of life. I have been doing so much better that my hope that I'll be able to do more of what I used to be able to do has swelled to the combustion point! I wish I could send each of you some of my good feelings. I certainly hope that each of you also continue to improve. I know I probably will always have POTS and that it will more than likely show itself over and over again at totally unexpected times, but for now I am just glorying in how well I feel. Now all I'm taking is the 0.1 mg of Florinef and 100 mg dose of Zoloft, plus my allergy and asthma medications. Of course I also wear my compression hose everyday and drink two quarts of water and eat lots of foods with sodium and potassium. And get as much sleep as I can.So, here's to good health to us all!!! Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted May 18, 2004 Report Share Posted May 18, 2004 I'm so happy for you Deb Nina Quote Link to comment Share on other sites More sharing options...
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