Kimba Posted June 22, 2006 Report Share Posted June 22, 2006 Just diagnosed with POTS after my local Neurologist was blaming my 24/7 brain fog on my MS. I am now on Lopressor, wearing support hose (knee high), and increasing salt, potassium and fluids. I have also worked out an at home strength and cardio program with the help of a local rehab center. I am very committed to doing all I can to get better, but have only just started so have seen no big results yet...except that the nausea is a bit better the past few days. My symptoms are: Brain fog 24/7 for the past almost 4 months, nausea that started after a course of steroid treatments for the incorrectly diagnosed MS flare up, and headaches. I was diagnosed at the Cleveland Clinic. They have also started me on Topomax as they feel my headaches are undiagnosed migraines (have had them for years). They also found a hiatal hernia through this diagnosis process, so maybe that is contributing to the nausea (?) Either way I am currently taking Nexium for that, and the decreased nausea seems to have coincided with that. Bottom line, all three symptoms or only the fogginess may be due to POTS. However, my tests have shown that it is venous pooling that is causing the domino effect in my body, and that my blood volume and heart function are fine. I have never fainted or really even felt light headed...it is always more just this 24/7 foggy feeling or the feeling you get when having trouble perceiving the world while experiencing a migraine headache. I was diagnosed with MS in April 1999, and this would have been my first real flare up...so I have been really lucky and pretty symptom free to date with that (knock on wood!).The posts on this discussion group are helpful but I am looking for some success stories from those that have had similar symptoms to mine. And any helpful tips for getting back on track and leading a more normal life.Anyone ever use oxygen in the evenings at home to "feed their brain" and get some temporary relief from brain fog? If so, do any effects last into the next day? I am overweight and not fit, but able to get around and function on most days even after this four months of illness and inactivity. Anyone seen great improvements through disciplined lifestyle, diet and fitness changes? Any input on what I might expect as far as recovery time if I am fully committed to all the recommendations of my Dr.'s, who are very knowledgeable about POTS? By this I mean how long before I can hope to see some improvement in the symptoms I mentioned and start to feel more normal again? One Dr. in Cleveland told me to not look for any big changes for at least a month. Sound about right to anyone that has had similar experiences to mine? Thanks - Quote Link to comment Share on other sites More sharing options...
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