Anyone See Any Dysautonomia Doctors In Wisconsin?

[tiger]

I need some help finding a doctor. I live in Chicago. I don't really want to see the one in Chicago because she is an endocrinologist. I would rather see a neuro or cardiologist as that is where all my symptoms are. Please help, I can't take this anymore and need advice.

[Tammy]

I'm not sure how far of a trip your able to make, but in Minnesota, the Mayo Clinic in Rochester works with Dysautonomia, but you would want to ask them specifically to see you in the Autonomic Lab, rather than going through what I did, which added another week to my testing as I started in the Heart/Blood Vessel department and didn't accomplish anything... they thought it was muscular, so I went from dept to dept only to leave undiagnosed, but found out later which department I should have asked to be seen in.

Good luck with finding a doctor,

Tammy

[dawn]

Sara,

I saw a physician at the Marshfield Clinic last year who specialized in dysautonomia. He was leaving and going to Milwaukee. I can't remember his name, I want to say Dr. Heimer???????????????? If you call Marshfield Clinic I'm sure they would give you his new location. He was knowledgable. Did a tilt table and I was happy with his evaluation.

Good Luck

Dawn

Sara,

PS- He is a neurologist. As is Dr Low who I see at Mayo. The cardiologists are so eager to do an ablation. I avoid them and stick with an internist and a neurologist.

Dawn

[Marie]

Sara,

I see Dr. Rose Dotson in Milwaukee, WI. She has worked with Dr. Low at Mayo. They also send her difficult to diagnose patients. I went to The Medical College of Wisconsin/Froedert at first. Dr. Dotson helped develop the Autonomic Testing Facilities there. They sent me to her because my symptoms like so many of us are so unusual and their neurology dept. did not feel they could help me any further. The hospital put me through 10 months of tests. She found that there were a few they did not do and she sent me to a cardiologist who discovered I have a slow message to my atria. Over 8+ years of symptoms and different diagnosis's, she at least had a few answers and is not willing to give up. I have autonomic neuropathy, orthostatic hypotension, asthma, and raynauds in my entire body. I have many other symptoms which come and go. I wish you well on your quest. Please remember to never stop looking for answers, research, and ask as many questions as you can!

Take care,

Marie

[DSM3KIDZ]

I also see Dr. Rose Dotson in Milwaukee, WI

[calypso]

I would go to Milwaukee -- I think Froedtert has several specialists. There are zilch in Madison, which is where I live. They have heard of POTS, are willing to work with you on medications, etc., but don't really know any more than that.

Good luck,

Amy

[LauraLou64]

Dr. Rose Dotson was my Neurologist by has retired.

I live in Oconomowoc Wisconsin and was wondering who any of you see.

Thank you.

[MikeO]

10 hours ago, LauraLou64 said:

Dr. Rose Dotson was my Neurologist by has retired.

I live in Oconomowoc Wisconsin and was wondering who any of you see.

Thank you.

Hi LauraLou,

I also am from wisconsin. When Dr Dotson retired it was hard on a lot of folks. Rumour is that froedtert in milwaukee still has a couple of Dr's that work with Dysautonomia.

https://www.froedtert.com/neuroscience/autonomic-disorders

UW Madison has one Doc that also deals with POTS but only with pediatrics. 

I know quite a few folks that go down to NorthShore university north of Chicago.

https://www.northshore.org/neurological-institute/centers-and-programs/autonomic-disorders/

Only other option i know of is the Mayo Clinic.

I will be talking to my Doc tomorrow about having some autonomic testing done. I will see what he has to say.