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Posted

Hey everybody,

Do you remember me? I still come on and read every now and then but I haven't responded to anything in awhile. My life has gotten soooo much better. The severe depression has gotten so much better and I think it is because I finally accepted I have an illness that gives me limitations. I still push myself hard but I don't expect unrealistic things from myself. I still have all the same symptoms regardless of all the medication changes.........with fatigue and slight confusion being the worse. I deal with it so much better now........my family and I just expect that I won't remember to do things so they do silly things like post notes all over the house to remind me to do things...........such as my son needed me to make an appt for him........he left notes on the bathroom mirror, on the computer, on the fridge, on the front door.......and I didn't forget......lol. It feels better that my family is working with me and instead of getting frustrating with me, they are being creative and helping me come up with great ways to cope. Now this one is funny and some might not believe it but it is true. My dishwasher went out and I can't stand a cluttered house so when the dishes started piling up and I couldn't stand up long enough to wash them I was getting so frustrated so I figured out how to fix it.............this is what I did......I got the huge outside trash can and I threw away every plate, saucer, cup, glass, bowl.....except for 4 each for my family and the pots and pans.......if I had two of any kind I threw them away. When my husband came home he couldn't stop laughing. It really has cut down the amount of dirty dishes. Haha! I know it might seem severe but it really made me feel better. The limitations were hard to accept and the not working was the worst but I believe I am at a very good point in my life and believe that there is a reason for everything. I am going to the beach (6) hours away for a 4 day weekend for my nieces wedding.........and I am actually looking forward to it and very excited. I know I will be limited but it doesn't matter.........the things I will be able to do will be great. It is great to come on here and see all the famliar names. Guess I will stop boring everyone now. Just want to say one more thing. I thank everyone in the DINET forum for all the encouraging words from before.......you guys will never know how much you helped me make it from day to day when it seemed like I was slipping deeper into that dark hole. You guys are the most caring people ever and I have benefitted greatly from all of your meaningful words. THANK YOU!

Paige

Posted

Hi Paige,

I am really proud of you for your progress. I know it was a difficult journey and now you are at a point where you can enjoy life again (in a different way of course).

Thanks for sharing your victory with us.

Posted

do we remember you????????? OF COURSE WE DO!!!!!!!

Paige,

i am so glad for you that you accepted your illness. i understand how this makes your life easier. you made me laugh with the way your family is helping you, and you are right: that is soooo important. i know that at times it still is so very difficult to accept being so limited as some of us are, but i know that when you can, the things that are left to do are so much more valuable (hope you understand my english as i'm brainfogged today). i know how you have struggled and, like ernie, i am so very proud of you.

enjoy your new life paige and i hope we'll see you around more often!

corina :D

Posted

Paige, thankyou for sharing your story- it was NOT boring! I love to hear that there is HOPE for all of us! I hope you continue upward and keep encouraging us. :D - Ellen

Posted

Paige,

I'm so excited to hear the vibrance and uplift in your post! That's not to diminish the daily struggles you face because I know those are difficult but I'm sooooo glad to hear you are feeling better in terms of accepting the condition.

It's so important to have that family/friend support too. I'm glad your family is seeing you through this in helpful ways.

Hang in there and don't be a stranger around here!!

Posted

Paige, glad you are feeling better emotionally. Sad you are still having problems physically. It's helpful when we finally realize we do have limitations and just accept it isn't it. Rather freeing, as opposed to fighting it and fighting it and making ourselves sicker....morgan

Posted

Paige, the emotional journey for most of us is so much harder than the physical. Good for you for making the journey to a better spot! :D Nina

Guest tearose
Posted

Hello Paige and welcome home!

It is a long and winding road isn't it. But I am glad the journey brings you back to us.

Thank you for sharing what you have been up to and no, it is never boring to listen to.

You sound like you are in a much stronger place overall and I am happy for you along with everyone here!

best regards, tearose

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