Reputta Posted May 8, 2004 Report Share Posted May 8, 2004 Just wondering if this is normal. Just when I thought I was adapting, this week I crashed. Wednesday I spent the whole day in bed I was so fatigued. Didn't really sleep the whole time but felt like I couldn't move. My husband even had to help me bathe. Ugh! I hate this. I bawled and bawled. It is just so hard for me to admit that I can't do everything. But I am feeling better now. My friends said in the past few weeks they could tell in my eyes I was going down. Does everyone with POTS do this? I have no idea what trigered it. Did my body just have enough and it was time to rest? Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted May 8, 2004 Report Share Posted May 8, 2004 I seem to go through waves...times that are somewhat better, and times that are worse. When I'm in one of the bad phases, I don't leave the house, basically live between my couch and bed, and need help with all daily living tasks. On my good days, I can work, drive, etc. On a bad day, I can't do anything, including making meals and bathing.Nina Quote Link to comment Share on other sites More sharing options...
Sak Posted May 8, 2004 Report Share Posted May 8, 2004 The ANS instability of dysautonomia is capricious and often unpredictable. Some days I can do all the right things and still wind up feeling like crap. On some bad days, the Adderall helps get me going; on others, it just makes me nervous and fearful. Quote Link to comment Share on other sites More sharing options...
morgan617 Posted May 8, 2004 Report Share Posted May 8, 2004 my hubby seems to be able to see a bad spell coming on me. he says i just look funny, and sure enuf, bam. i have absolutely no idea what triggers them, or keeps them at bay. if i did, i stay far away from the triggers tho! morgan Quote Link to comment Share on other sites More sharing options...
Sak Posted May 8, 2004 Report Share Posted May 8, 2004 my hubby seems to be able to see a bad spell coming on me. he says i just look funny, and sure enuf, bam. i have absolutely no idea what triggers them, or keeps them at bay. if i did, i stay far away from the triggers tho! morgan Triggers can be anything, even subtle things that bother no one else; someone mentioned changing barometric pressure a while ago. The ANS of dysautonomics is like a gun with a hair trigger, or nitroglycerin; it doesn't take much to set it off. Quote Link to comment Share on other sites More sharing options...
Michelle Sawicki Posted May 9, 2004 Report Share Posted May 9, 2004 I have ups and downs, but to a lesser degree than you. I seem to have plateaued over the last couple of years. I have also had people say they could tell I wasn't feeling good by looking at my eyes. Weird.Take care,Michelle Quote Link to comment Share on other sites More sharing options...
Aprilmarie52 Posted May 9, 2004 Report Share Posted May 9, 2004 People can tell that I dont feel well by looking into my eyes, too. They say that they are barely open and very glassy. I get this look like I am completely out of it. The people at the ER always ask if I am on drugs because they think that I took to much and am about to OD or something. It is very frustrating. Quote Link to comment Share on other sites More sharing options...
migraine Posted May 10, 2004 Report Share Posted May 10, 2004 I find that about every 2-3 weeks I simply run out of gas. It seems to happen when I finally have a day off or nothing to do. It's like my body says OK, you've finally slowed down, so I'm going to shut you off completely. This is usually when I get a migraine or tell my husband and family,..."that's it, I'm going to bed, see you in about 5 hours." I usually take a day or so and then perk up. Until I was diagnosed with POTS, I thought everyone did this just because we all seem to lead such busy lives. Quote Link to comment Share on other sites More sharing options...
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