Guest Julia59 Posted May 1, 2006 Report Share Posted May 1, 2006 Hi everyone........... Today my PCPs office called and said my blood work was OK---other then the cholesterol---of course-----pretty soon I'll need to get back to my pocket lint diet. That's probably the only thing I can eat that may make a difference. My numbers did not change much--total is still 195---and the HDL is still too low---27--- The person who called told me that the Doc wasn't going to put me on any meds, but said I should exercise vigorously and change my diet. OK---sure----I'll run outside right now and start running. I told the nurse---or whoever it was that I am unable to do aerobic exercise because of my health issues, and told her I try to control my diet---and usually do pretty good, except that I may have cut out too many of the good fats. Then I told her that I have increased omega-3 fats. I guess the good news is that it didn't get any worse.More good news is my vitamin D levels are back to normal. I don't know if you all remember, but my levels were very low last summer----under 7---when normal was 25-55-----now I'm at 29----woo-hooo, one less worry on my mind. I don't know how they improved---The only think I can think of is that I started exposing my skin to the sun a little more---or well, just glad it's better. My CBCs were normal too----more good news.My concern is that my physician already forgot my limitations, and may blow this POTS, EDS, chiari stuff off.If she thinks I can exercise vigorously---she must not think any of this has any impact-----or do you think she just forgot, and didn't remember what was in my file, and just went by the Lipid level report?I have an appointment with her on Thursday for a full physical. I just talked with someone here in Toledo who has chiari, pots, and EDS and she said this doctor refused her as a patient because she was too complicated--------------------- This is the same physician who told me she wanted to know which websites to look into to learn more about this stuff. I have only seen her once for a consult, and she scheduled my for a full physical for this Thursday--May 4th. I'll be printing her some information----and also take a brochure. I want her to see some of the studies going on.I still feel really crappy, mostly weakness, headaches, lot's of upper spine pain---and more then the usual pain in my neck. I'll feel POTSY---the more I exert myself---and that means even typing this---or sitting up too long. I still muddle through, do a few light house chores, cook----but have to rest a lot between. Going out is still overwhelming to me, and I'm very limited----I'm not very steady on my feet---and just get plain wiped out. Of course the numbness in my legs continues to get worse, especially when I first get up in the morning, or sit for a while. However, I count my blessings that I get out at all----it's just hard to see how limited I am when I do---I still never stop being surprised on how limited I am physically---and sometimes cognitively.Do you think I'm worrying too much in advance about the appointment?---I think you all know how it is.It's simply unbelievable the extent of the ignorance out there in the medical community.Thanks for reading-------------Julie :0) Quote Link to comment Share on other sites More sharing options...
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