Michelle Sawicki Posted April 13, 2006 Report Share Posted April 13, 2006 Hi guys!As we grow, so does our need for help. If you want to join the DINET team and lend a helping hand with any of the following volunteer positions, we'd love to hear from you. Please PM me through the forum, or write to: staff@dinet.org if you are interested. Thank you!EditOne of our editors has retired, and we are searching for a new editor to take her place. If you have editing experience we would love to hear from you.Find press releasesIf you like to research and know how to use the Internet this may be the position for you! Help us find recent, dysautonomia-related press releases to include in our quarterly newsletter.Help keep our links up-to-dateDINET's website is chock full of links. You can help keep DINET's website up-to-date by checking the links on a monthly basis. There are online link checkers to assist you in this task.The person in this position will document broken links and then use a search engine to investigate whether websites with broken links have changed their urls or no longer exist.Find new linksWe need someone who enjoys researching on the computer to find dysautonomia-related websites to link to from our website. We prefer to link to websites that are written by doctors or published by organizations.Update DINET's list of support groupsHelp keep our list of support groups up to date by contacting support group leaders through email and updating their DINET listing.FundraiseDo you have ideas for fundraisers in 2006? Are you willing to do the work? If so, please contact DINET and share your ideas.Grant SearcherWe could use help finding grants for which we may qualify. If you can help with this, please let us know.Help build our "Assistance" pageCan you assist us in finding web resources that will help others for our "Assistance" page? If so, let us know!Resarch PubMed/Medline for the latest NCS findingsDo you like to research and know how to use PubMed or a similar site? If the answer is yes, DINET could use your help in finding the latest publicatons on neurocardiogenic syncope! Email us for further information. Quote Link to comment Share on other sites More sharing options...
Guest Julia59 Posted April 13, 2006 Report Share Posted April 13, 2006 Michelle,I still search for the latest research, I just haven't done much of it recently. I kind of grew a little weary and burned out with reading medical material--(I'm sure you already have most of what I have read), but I'll double check. It was just a brief period-----I needed to get away. I will continue to look for the most up to date research. I know I have sent some articles/journals in the past, and I will continue to do it.I'll keep you posted on what I can find.Julie :0) Quote Link to comment Share on other sites More sharing options...
Michelle Sawicki Posted April 14, 2006 Author Report Share Posted April 14, 2006 Thanks, Julie.Michelle Quote Link to comment Share on other sites More sharing options...
Radha Posted April 14, 2006 Report Share Posted April 14, 2006 what kind of editing is involved? i dont have official experience, but am good at editing, radha Quote Link to comment Share on other sites More sharing options...
Gena Posted April 14, 2006 Report Share Posted April 14, 2006 Michele,I have a lot of editing experience (although my spelling isn't as keen as it used to be since getting POTS!! So thank goodness for spell check:P ). Do you need someone to edit the newsletter, the entire site or what would be involved and about how many hours a month would it require?If you already have someone to edit, then I wouldn't mind checking for broken links each month. Just let me know. Gena Quote Link to comment Share on other sites More sharing options...
BuddyLeesWife Posted April 14, 2006 Report Share Posted April 14, 2006 I can sign on for researching NCS findings. I do that anyway but I am not sure that I know all of the best sites to check. I mainly use the Medscape Advanced Search function but I can check other sites you think are worthwhile. Quote Link to comment Share on other sites More sharing options...
goldicedance Posted April 14, 2006 Report Share Posted April 14, 2006 I don't have "official" editing experience. I spent the past 30 years writing papers and articles as well as editing my staff's manuscripts. I would love to be an editor! Quote Link to comment Share on other sites More sharing options...
Guest Julia59 Posted April 14, 2006 Report Share Posted April 14, 2006 Michelle,Here is an interesting abstract.http://www.springerlink.com/(b3e0lvboro2fe...ults,1:108933,1http://www.ncbi.nlm.nih.gov/entrez/query.f...l=pubmed_docsumI hope you can open it.Julie :0) Quote Link to comment Share on other sites More sharing options...
Michelle Sawicki Posted April 14, 2006 Author Report Share Posted April 14, 2006 THANK YOU to all who offered to help! JaneEyre9 was the first to contact us regarding the editing position, and we are pleased to announce that she will be our new editor. Amber has volunteered to update the list of support groups. BuddyLeesWife, I would love to have your help with finding NCS articles. Thanks. I'll send you a PM.Gena may be taking the Link Checker position...I am waiting to hear back from her. Other than that, we can still use a lot of help. Please let me know if you are interested in any of the positions still available.THANK YOU!!! You guys are the greatest!MichellePS...Thanks for those links, Julie. I'll check them out. Quote Link to comment Share on other sites More sharing options...
Richland acres Posted April 16, 2006 Report Share Posted April 16, 2006 Well I know I would not qualify for any of thses positions, but I do want to let you know I am available for maybe some work in the Brochure areas. I could always mail some out help find people to support dinet by using the brochures and sending out if and asking for help of donations. Is this any thing that is available? Any ideas? It just sounds like an easy thing for my pots brain fog body to handle. Let me know. I could send out brochures and such to many medical places. I know around here we have a rack that holds a lot of brochures and we could easily have the dinet brochures in there also. Just an idea,Brenda Quote Link to comment Share on other sites More sharing options...
Michelle Sawicki Posted April 16, 2006 Author Report Share Posted April 16, 2006 Thanks Brenda, I'll PM you. -Michelle Quote Link to comment Share on other sites More sharing options...
worththewords Posted April 16, 2006 Report Share Posted April 16, 2006 Michelle,I sent you an e-mail about fundraising. Hope you got it.-Alexia Quote Link to comment Share on other sites More sharing options...
Michelle Sawicki Posted April 17, 2006 Author Report Share Posted April 17, 2006 Hi Alexia!I got it and sent you a return email. Thank you,Michelle Quote Link to comment Share on other sites More sharing options...
Wufflebear Posted April 17, 2006 Report Share Posted April 17, 2006 Michelle, I could help find new links, if you still need someone for that...-Heather Quote Link to comment Share on other sites More sharing options...
Michelle Sawicki Posted April 17, 2006 Author Report Share Posted April 17, 2006 Hi Heather,I would love to have your help with finding new links. I'll send you a PM with details.Take care,Michelle Quote Link to comment Share on other sites More sharing options...
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