lnc Posted April 3, 2006 Report Share Posted April 3, 2006 Four years ago, I had a positive tilt table test while hospitalized for a week for fainting/tachycardia. During the test, I fainted and my heart beat stopped for about 20 seconds. I was placed on a beta blocker at the time. I have switched around bc I don't like being tired and tend to gain weight on the beta blocker. I also continue to have a lot of extra beats and flutters which showed up a lot on a holter monitor done by an electrophysiologist. I'm ready to get back to the cardiologist (who did the tilt table in the hospital - was really nice) or the electrophysiologist (who was extremely alarmed at my family history, somewhat condescending that I must be a stress case, and recommended I go to a teaching hospital which I can't do right now).I was diagnosed with myasthenia gravis at 20 -I am 37 now. I took mestinon for 10 years. I had a thymectomy at 23. I also was diagnosed with anti cardiolin antibody miscarriages and took prednisone for 1 baby and ivig for my other two. My oldest son has a mitochondrial disorder that has been severely progressive. He is 11, profoundly mentally and physically disabled and very medically fragile. So, I have a history of mitochondrial disorders and autoimmune disorders - both of which I have read implicated in pots. My youngest also was recently diagnosed with type 1 diabetes (autoimmune). So, to complicate matters, 4 years ago I had an emg for myasthenia at a teaching hospital - I wanted to clarify if my muscle weakness truly was myasthenia since my son's geneticists were concerned I had a mito disorder. I had a borderline emg. I went of the mestinon. That is when my fainting started up and I got the tachycardia -- resting heart rate continually in the 100's. Now, I'm reading people actually taking mestinon for dysautonomia! I want to go back on it. My medical history now is so convoluted I don't know where to turn. Should I go to the cardiologist who is helpful, or to the electrophysiologist who was not so great? I can't really afford to go to a teaching hospital for a big work up - my oldest son's medical expenses are astronomical and we're saving for an insulin pump asap. Thanks for reading and any advice!! Quote Link to comment Share on other sites More sharing options...
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