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Hi everyone,

I just stopped crying a few minutes ago enough to post - it has been a roller coaster day! As you know I've been battling insurance to get coverage to go see a POTS sepcialist, and this afternoon I found out again that I was being denied to go to UVA. I was devastated - and on top of that my neuro said that my TTT showed no signs of "autonomic disfunction". I tried to tell her that they did the test wrong, and to please read the definition of POTS, and that I meet the criteria, even with the incorrect test. She told me she had "confidence" in the test and its results, and refused to read the info I wanted to fax her. Actually she wouldn't even call me directly, this was all done through her nurse.

So onto the good news - before all this happened today, actually this morning, I decided to call my very first cardiologist for grins and ask if he had heard of POTS. I left a message, and his nurse called me back a little while ago, and said that he is very familiar with POTS, and would definitely like to see and help me. The nurse was soooo nice on the phone, I told her what happened with the recent TTT, and she agreed that it needed to be redone.

So anyways, they are setting up an appt and they accept my insurance, and they are only 20 minutes away. I am so darn happy :) I couldn't stop crying. What a mess I am !

Thought I'd let you all know......

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claire! that si great!! I'm so gald that you are fighting this and tht you are gettinga second opinion!! WAHOO for you!! HUGS

linda

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THAT'S GREAT!!!!!!!!!!!!!!!!!! After reading the first part of your post I was going to reccomend you get another cardio, but you already did it and I'm so happy for you!!!!

Please let me know how it goes and if you're able to make it to UVA after all.

UnicornIsis

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Good luck..........I'm happy you can get a retest

I don't like to say this but hope you have a "little" bad day........just enough to give you the answers your looking for.

Please forgive me for that, I've wished that for myself as well. Not "knowing" for sure is such a lonely feeling.

Lots of ((((hugs))))

Amber

If you don't need a bad day for the results you need, then I take it back. :D

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Good luck..........I'm happy you can get a retest

I don't like to say this but hope you have a "little" bad day........just enough to give you the answers your looking for.

Please forgive me for that, I've wished that for myself as well. Not "knowing" for sure is such a lonely feeling.

Lots of ((((hugs))))

Amber

If you don't need a bad day for the results you need, then I take it back. :D

:D I hope I have a completely bad day full of symptoms! I would be thrilled if they could see me at my worst....but with all my records I think even if I'm feeling good that day he'll be able to see whats going on.

Thanks everyone!

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