luckygoat3 Posted March 22, 2006 Report Share Posted March 22, 2006 Hi all,Just wondering if any of you have been diagonsed with Petit Grand Mal Seizures? The reason i am asking is because i have these blank stares (or at least that my parents tell me), i have no memory of them. I can be talking and stop and stare for 5 to 10 minutes and then pick up the convo. Also these weird body spasms/jerking spells are getting old. I am so exhausted after i have them. Something has to change....any ideas...susie Quote Link to comment Share on other sites More sharing options...
Jacquie802 Posted March 22, 2006 Report Share Posted March 22, 2006 Hi, Have you ever had an EEG? My mother is an epileptic and gets those type of seizures all the time.Jacquie Quote Link to comment Share on other sites More sharing options...
luckygoat3 Posted March 22, 2006 Author Report Share Posted March 22, 2006 Yes i have had three EEG's but those were like a year ago. susie Quote Link to comment Share on other sites More sharing options...
Be Still Posted March 22, 2006 Report Share Posted March 22, 2006 "Some partial seizures are associated with a change in consciousness, even though the person might appear to be awake and his or her eyes may be open. In this type of seizure, called a complex partial seizure, the affected person is unaware of the people nearby during the event, is not aware of his or her own movements or behaviors during the seizure, and does not remember the seizure after it occurs. When the person having a partial seizure is aware of having a seizure, is aware of his or her surroundings and remembers the event afterward, the seizure is classified as a simple partial seizure." http://www.intelihealth.com/IH/ihtIH/WSIHW...9339/26026.html "A normal EEG does not rule out seizures."http://www.nlm.nih.gov/medlineplus/ency/article/000697.htm Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted March 22, 2006 Report Share Posted March 22, 2006 Just a terminology clarification...petite mal seizures are the ones where there is no body jerking, just typically blank staring or blinking.partial seizures involve, as the name suggests, partial involvement of the body or limbsgrand mal would be the full out seizures involving loss of bodily control, typically tremoring, jerking and/or tensing of nearly the whole bodyNina Quote Link to comment Share on other sites More sharing options...
Be Still Posted March 22, 2006 Report Share Posted March 22, 2006 Susie,Just to clarify, I can be talking and stop and stare for 5 to 10 minutesIs it truly minutes or is it seconds? Quote Link to comment Share on other sites More sharing options...
kmpower Posted March 22, 2006 Report Share Posted March 22, 2006 Hi. When my EEG looked abnormal in a non-quite epileptic way, I found out that low oxygen in the brain makes it much more vulnerable if you are prone to seizures.Has anyone checked your breathing, BP and heart rate during one of the staring periods? OLL Quote Link to comment Share on other sites More sharing options...
luckygoat3 Posted March 22, 2006 Author Report Share Posted March 22, 2006 Yes it is actually minutes. No one has monitored my BP, breathing, or HR. I am not really sure what these things are but i am very curious and want to get to the bottom of these buggers.So do any of you know a good neuro in Ohio?susie Quote Link to comment Share on other sites More sharing options...
UnicornIsis Posted March 23, 2006 Report Share Posted March 23, 2006 Susie,Hey. I STILL haven't gotten to the movement disorder specialist down here. The day I was supposed to go we ended up at a funeral for my husband's surrogate father in Miami. So it was resecheduled for a month later. And I just got called yesterday and told the doc won't be in the office that day and they rescheduled it almost ANOTHER month later. I called them back and explained how long I've been waiting and that lady got me about 2 weeks sooner AND in the afternoon instead of early morning. So when I FINALLY FIND OUT I will let you know what they say. Oh, something you might want to try. I started with a neuro in VA right before the Wedding and he said since I almost certainly will never have trouble during one of my appointments this is what to do: When something happens, grab a video camera and start filming me until it stops or a few minutes after. And do this several times. Then when I have the appointments bring in the tapes and he'll be much more able to tell em what's going on. Maybe you can try this so when you do go to a doc you'll already be at the stage of your second appointment maybe. Hope this all helps and you get some answers. UnicornIsis Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted March 23, 2006 Report Share Posted March 23, 2006 I would like to add that I've used a video camera at work when we've suspected a child of having seizures--and then we send the video with the parents to doctor appointments.Nina Quote Link to comment Share on other sites More sharing options...
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