spapanik Posted March 19, 2006 Report Share Posted March 19, 2006 Hi, I am new here. My name is Stacie and I was just recently diagnosed with POTS. For three years I have had continuous vertigo. I don't get nauseated i just feel like Im going to loose consciousness. No one has been able to tell me what is going on and I have had every known test in the book. Everythings been normal. Now they are telling me that I have dysautanomia or POTS and I am just wondering if this is really what I have. From what I have researched, most of the people with POTS don't have vertigo, and if they do it is not their main symptom. I have it 24/7. Just in different severity. I usually do pretty good throughout the summer(although Im never normal and have the vertigo still) but in the winter the vertigo always flares up. This winter I have been in bed for four months. When I lay down, the room spins, but when I stand up, it's so much worse that I have to lay back down. I guess a good reason why they diagnosed me with POTS is when I stand up, my heart rate goes from 120-150. Do any of you have vertigo as your main symptom?Along with the vertigo, I have experienced weird gravity sensations. It feels like I'm going against gravity when I stand up - it feels like gravity is pushing me down. I also get the opposite sometimes where it feels like I'm free-falling. I just wondered if anyone else feels these same things.Thanks!Stacie Quote Link to comment Share on other sites More sharing options...
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