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genie

von Willebrands Disease?

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Just wondering if any of you have von Willebrands Disease. This is a condition that affects blood clotting. People with von Willebrand's disease (vWd) may bleed from cuts for longer than normal, and the bleeding does eventually stop. The severity of vWd varies but it usually affects people only mildly. Therefore, most people with vWd live complete normal active lives.

My doc just tested me for this have always bruised badly and even more so now was thinking it was due to the POTS or side effects of the med's but found out that I have this?? Just wondering if any of you have had or have been tested for it, a simply blood test can tell?

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The disease is pretty rare:

"In the US: vWD is estimated to affect fewer than 3% of the population."

http://www.emedicine.com/ped/topic2419.htm

for info on testing, check out the parts under "differentials" and "workup"

Nina

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also:

http://www.ncbi.nlm.nih.gov/entrez/query.f...t_uids=98011268

J Intern Med Suppl. 1997;740:121-8. Related Articles, Links

The problem of diagnosing von Willebrand's disease.

Batlle J, Torea J, Rendal E, Fernandez MF.

Servicio de Hematologia y Hemoterapia, Hospital Juan Canalejo-Teresa Herrera, La Coruna, Spain.

Diagnosis of von Willebrand's disease (vWD), particularly vWD Type 1, remains a clinical problem for several aspects. Its definitive diagnosis requires documentation of three factors: bleeding, low levels of qualitatively normal von Willebrand factor (vWF), and inheritance. In the absence of any of these factors the diagnosis may be only merely 'possible', or even unacceptable. Laboratory diagnosis of vWD includes screening tests and confirmatory tests. vWD Types 2 and 3 are relatively easy to diagnose and appear to be genetic disease of a single locus, the vWF gene. As new genetic and possibly non-genetic factors are discovered, the diagnosis of vWD Type 1 may become easier.

Publication Types:

* Review

* Review, Tutorial

PMID: 9350193 [PubMed - indexed for MEDLINE]

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