Wufflebear Posted March 6, 2006 Report Share Posted March 6, 2006 So I want to make sure that they do my tilt table test correctly and that I get as much out of it as I can. What should I be sure they do?their letter just says " you will have electrodes placed on your skin to monitor your heart rhythem, and a cuff on your arm to monitor your blood pressure. An intraveneous line willb e inserted in your arm in the event your test requires additional medication or IV fluids.."Advice?? Quote Link to comment Share on other sites More sharing options...
Poohbear Posted March 6, 2006 Report Share Posted March 6, 2006 Make sure you inquire about going off meds and how long each med will need to clear your system for the most accurate test results.If you are on a beta blocker and need to ween off of that then be aware then sometimes when going off a beta blocker you can get a 'rebound' effect where your heart rate is much higher. It can be very miserable and you need to work with your Dr. but often, if you can 'tough it out' your heart rate will level out on it's own.It took me 4 or 5 weeks to get over the rebound effect of a bb but then I actually felt so much better for a while Quote Link to comment Share on other sites More sharing options...
Lukkychrm42 Posted March 6, 2006 Report Share Posted March 6, 2006 My doctor wanted me on all my meds for my first tilt, since I was still having symptoms. It was positive for POTS even with the beta blockers. So if you're on anything, including cold/flu meds, steroids, caffeine, ginseng, propolis, guarana, anything that could affect your BP or heart rate, make sure to check with the doctor to see if he/she wants you off everything or not. I have my second tilt coming up in a week, and I have to stop everything 2 days before, because he'll be testing my blood flow/circulation during it. Good luck!! Quote Link to comment Share on other sites More sharing options...
gdomaracki Posted March 6, 2006 Report Share Posted March 6, 2006 Not to worry. I know that when I got my done I was completely stressed out about it. And although the test will be unconfortable, think about the results you are getting from it. Best of luck to you dear! Nicole Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted March 8, 2006 Report Share Posted March 8, 2006 Just make sure you can have some time off afterwards because i felt a little out of it in the classic POTS way. Hey if you want to confirm whether you have POTS caused by hypermethylation of the NET gene promoter, ask your doctor to test your levels of norepinephrine supine and at various levels of tilt as well as your 3,4-dihydroxyphenylglycol (DHPG) levels at the same time - this will demonstrate poor norepinephrine reuptake which the Baker Institute feel is the primary cause of POTS in many patients. Quote Link to comment Share on other sites More sharing options...
Wufflebear Posted March 8, 2006 Author Report Share Posted March 8, 2006 Yes, I will totally ask for this???Anything else I should ask for??? What is a parepres monitor?? Any other blood tests they could do during the tilt?? Quote Link to comment Share on other sites More sharing options...
janineerrn Posted March 8, 2006 Report Share Posted March 8, 2006 Hi H,Everyones advice is great. I can add.. make sure you have someone with you, rest before and plan on resting after. See if they can order a plasma metanephrine test on you if you get symptomatic. The Mayo clinic in Jacksonville Fla does the test, your docs office can call for instructions on drawing and sending the blood.Dont stress out too much. We all survived at least one if not multiple TTT's.Good LuckJanine Quote Link to comment Share on other sites More sharing options...
Wufflebear Posted March 8, 2006 Author Report Share Posted March 8, 2006 would this be a good time for them to do a catecholamines or would that be duplication of the plasma metanephrine or norepinephrine supine and at various levels of tilt or the 3,4-dihydroxyphenylglycol (DHPG) level tests???whew... lol Quote Link to comment Share on other sites More sharing options...
janineerrn Posted March 8, 2006 Report Share Posted March 8, 2006 LOLIf you get symptomatic it is a good time to do all those tests. However, they like to drag things on forever so I doubt you will get them all done at once. Get what you can while you can. It wont hurt to ask. A lot of these blood tests are done, if done properly, after an IV is in your arm, they should use it to draw blood for the tests and not individual "sticks". Quote Link to comment Share on other sites More sharing options...
Ernie Posted March 8, 2006 Report Share Posted March 8, 2006 HI,I would ask for the catecholamine test at the same time if it is available. Quote Link to comment Share on other sites More sharing options...
Wufflebear Posted March 8, 2006 Author Report Share Posted March 8, 2006 the catecholamine test should be done laying and then standing?? Just in case they are not sure... Quote Link to comment Share on other sites More sharing options...
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