cmtaylor5 Posted February 28, 2006 Report Share Posted February 28, 2006 I've been visiting this board since August of 2005, and I'm wondering if anybody else out there goes to the same electrophysiologist as me. His name is Marcus Wharton and he is at MUSC (Medical University of South Carolina at Charleston) He is the Director of Clinical Cardiac Electrophysiology. He used to be at Duke.After 10 months of improper treatment and a misdiagnosis (during which my symptoms got progressively worse), a physician friend found him for me. I got an appt. rather easily after explaining my symptoms to the scheduling nurse (she fit me in in 3-4 weeks). They asked for all my records a couple of weeks in advance. At my appointment, I was interviewed for about an hour by his NP Judy (who is fabulous). She opened up all my records and explained everything to me, including results to tests that the ordering doctors had never reviewed with me. She and Dr. Wharton had already thoroughly reviewed my records. She then reviewed my interview with Dr. Wharton.Once he came in, he asked me more questions about sweating, and GI function, etc.... He told me I would probably need a TTT, but performed a "poor man's tilt" and explained the results and said I didn't need one after all. He diagnosed me with POTs right in the exam room. He also explained why the meds I had used in the past (that had made me much sicker) had been the wrong choices. He spent over an hour with me and has an excellent bedside manner. I only had pretty vague questions, because while I had heard of POTS before, I thought I was going to be diagnosed with SVT that day and was preparing to be told I'd need an ablation. Instead, he told me that ablation was a big no-no for POTS!The reason I'm writing this is because I never see his name mentioned and one of the most impressive things about being his patient is the follow up care. I notice lots of people on the board have trouble with that. If his office hasn't heard from me in more than 3 months, they call me! They always ask me if I need to be seen, have any questions, and "want the details" of how I'm doing. They even ask me to type it up and send it in for my chart! Every time the conversation ends, Judy says, "Let me know if you want me to get you in here!"I have never waited more than 24 hours to have a phone call returned. Usually it is within 2 hours. MUSC in general has been great. They even make hotel reservations for you when you make an appt.! (I lived 5 hours away when I was diagnosed).Anybody else out there with the same doc and the same experience?Carolyn Quote Link to comment Share on other sites More sharing options...
StaceyYount Posted February 28, 2006 Report Share Posted February 28, 2006 Hey Caroylnthat is so wonderful. I live in Florida and a trip to SC might not be to bad for me and since the last 2 "specialists" I have seen have told me I need to go see a specialist then he might be one to see. Would you email me his contact information. I would be so grateful I am glad you have foudn a wonderful doctor, that is half the battle huh?Thank you for sharing this and hope you are doing ok today!Stacey :-) Quote Link to comment Share on other sites More sharing options...
janineerrn Posted March 1, 2006 Report Share Posted March 1, 2006 Hmmmm,I have been to Duke and got the complete run around, endocrin to cardio to neuro ect.. This doc sounds wonderful. I wonder if I can get my insurance to pay for a trip out of state. Im in Western North Carolina so Charelston is about 6 hours from me. I was thinking of Vanderbikt thats about 6 hours in the opposite direction.Can you give more details about what he said about meds? Does he work with your Primary care doc?THANKS FOR THE POST!!! I feel like my (our) area of the country is lacking in the medical care we need.PeaceJanine Quote Link to comment Share on other sites More sharing options...
Sunfish Posted March 1, 2006 Report Share Posted March 1, 2006 carolyn - congrats on finding such a knowledgible, helpful & caring doc (& doc's office). there are definitely not enough of them with the combo! melissap.s. if you'd like to submit your doc for inclusion on the DINET Physician List, go to http://www.dinet.org/physician_finder.htm and fill in the requested info. that way when this post finds its way to the bottom others would still be able to benefit from the info. Quote Link to comment Share on other sites More sharing options...
cmtaylor5 Posted March 1, 2006 Author Report Share Posted March 1, 2006 Thanks, Melissa. I think I'll check with his office first (I have some event recorder readings to go over with his NP over the phone later this week) and if he doesn't mind, I'll post his info.Janine,I'll try sending you a PM with the answers to your questions.Carolyn Quote Link to comment Share on other sites More sharing options...
Sunfish Posted March 1, 2006 Report Share Posted March 1, 2006 carolyn - just so you know, by you submitting the info it doesn't automatically get posted. the doc always gets asked first by DINET. of course it's fine for you to ask first yourself too! melissa Quote Link to comment Share on other sites More sharing options...
cmtaylor5 Posted March 1, 2006 Author Report Share Posted March 1, 2006 Thanks, Melissa. I didn't realize that! Quote Link to comment Share on other sites More sharing options...
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