Ernie Posted February 20, 2006 Report Share Posted February 20, 2006 Hi,You all know that many of us have adrenaline rush and have insomnia problems. I was wondering if anyone was also falling asleep easily and had been diagnosed with Narcolepsy or calepsy?ThanksErnie Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted February 20, 2006 Report Share Posted February 20, 2006 Ernie, I don't recall anyone here on DINET reporting having narcolepsy. However, a long time ago, I think there was someone on the NDRF forum who had it--I would suggest going over there and using the search feature to see what you can find. Hope you find what you're looking for. Nina Quote Link to comment Share on other sites More sharing options...
corina Posted February 20, 2006 Report Share Posted February 20, 2006 Hi Ernie,i have periods in which i have insomnia but don't get in trouble during the day and there are other periods in which i fall asleep no matter what i'm doing. for example when i was playing a boardgame with my kids on just a sunday afternoon i suddenly had to stop because i felt that i was falling asleep. i've had that while i was computering too, i laid my head on the desk and fell asleep, waking up about 15 minutes later. i don't go to bed during the day anymore because i can stay in my chair and fall asleep very easily. i sleep about 30 to 60 minutes per time that i fall asleep, several times a day.i haven't asked a doctor about this, i think i should but i don't have the energy to find out what's wrong. it's just another thing that bothers me corina Quote Link to comment Share on other sites More sharing options...
labas_2u@shaw.ca Posted February 20, 2006 Report Share Posted February 20, 2006 Hi Ernie....I have cateplexy and it is really scary.....I get it only when I'm sleeping. It comes on when I am sleeping and I am trying to wake up only I can't move. I am totally paralyzed for a brief period of time...just enough time to scare myself to death..... Quote Link to comment Share on other sites More sharing options...
Ernie Posted February 21, 2006 Author Report Share Posted February 21, 2006 Hi,Thanks for your answers.I am watching House right now and they are talking about cataplexy. Very interesting. I will go back to my original sleep specialist. Quote Link to comment Share on other sites More sharing options...
Kitsakatsa Posted February 21, 2006 Report Share Posted February 21, 2006 I was diagnosed with "Narcolepsy without Cataplexy" two years prior to onset. Basically because I can see images when in a wakened dream state. I am awake, but having hallucinations because part of my brain is asleep. They would only happen at night as I was trying to sleep though- plenty traumatic (huge spiders, fire and things) but never dangerous. Quote Link to comment Share on other sites More sharing options...
morgan617 Posted February 22, 2006 Report Share Posted February 22, 2006 I've never had a sleep study, but know I have problems. it's hard for me to tell if it's drug related or not.My hubs has severe narcolepsy and I know i don't have his symptoms, so i think if my sleep is abnormal, it's due to some other cause. morgan Quote Link to comment Share on other sites More sharing options...
Ernie Posted February 22, 2006 Author Report Share Posted February 22, 2006 Hi,I also wonder what part of our sleep problems is related to dysautonomia and what part is something else? It would be interesting to have catecholamines measured with it. I have not heard of anyone doing it. Quote Link to comment Share on other sites More sharing options...
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