halmad85 Posted February 14, 2006 Report Share Posted February 14, 2006 Hi everyone! I'm so frustrated with doctors and trying to get myself a dx that I could just scream. I'm starting to consider just accepting it...yes, I have tachycardia and it can cause alot of symptoms, plain and simple. I saw the doctor today who actually does the tilt table test, and guess what..he's never heard of POTS!! He said he's heard of sinus tachy causing symptoms, but never heard of it being reffered to as POTS. So, basically he's just going to do the test now to get me to be quite. I told him today that sometimes I can have a symptoms without my pulse being sky high. For example, I had some nausea and just the cloudiness and shakiness today. But my pulse was about 90. Usually it will be higher during my symptoms, but sometimes I even feel one or two symptoms when it's not so high. So, he immediately was saying that my pulse isn't the only thing causing these symptoms. I did explain that if my symptoms are severe, my pulse is always about 120-160. Maybe he's right. Maybe it's not only the cause of my symptoms. I don't know what to think anymore. He checked my pulse while sitting/standing. Said it was 70, then went to 100 after standing. He said that is normal adjustment for the body and gravity, and there was nothing abnormal going on with that. He was also quick to say because there was no change in blood pressure that I shouldn't even be taking the Florinef because it's more for orthostatic hypotension. He didn't seem at all interested in the pain I've been having since all this started. He didn't seem to find my fatigue, cloudiness, and loss of appetite related. He also told me I'm complusive because I wrote him a list of my symptoms and described them for him. I thought it might be more helpful if I had time to think about it so I don't forget something or get mixed up in my words. He mentioned maybe I have an anxiety disorder. Expecially since I've already talked to 4 other doctors about the problems I'm having. Well, I just think it would be nice if I could find one that knew how to diagnose POTS, or at least have heard of it! I feel ready to give up on trying to find out why. Maybe it's not POTS. I mean, I do get symptoms while standing for long periods of time, just about always. My pulse will be pretty high at that time. But, I also feel bad sometimes if I just sitting down, but it's not severe. I do know that when I lay down, my symptoms will usually subside, except for maybe the cloudiness and just kinda feeling out of it (fatigue). I don't really know what it is, all I know is that I'm not right these days, and no doctor seems to know why. Any encouragement you can offer would be great and thanks so much for listening.Thanks, Jen Quote Link to comment Share on other sites More sharing options...
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.