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Terms of Service

Welcome to the Dysautonomia Information Network's forum! Please take a few minutes to familiarize yourself with our forum rules before joining in discussions. Posting on our forum indicates your agreement to the following:


The Dysautonomia Discussion forum is a place for patients and caregivers to discuss topics related to dysautonomia.

The Chit-Chat forum is a place for members to discuss topics other than dysautonomia, such as hobbies, pets, jokes, photos, entertainment, and family (including family members? non-dysautonomia related illnesses).

Please keep all discussions PG-rated. The forum rules apply to both forums. Neither forum should be used in a diary/blog type manner.


DINET?s forums are supportive and informational resources for dysautonomia patients and caregivers. You agree to have no more than one username on these forums.

Legal Issues

You agree that the Dysautonomia Information Network and/or its volunteers will not be held liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of these forums.

As a matter of site liability, you agree not to make public statements that express a wish to harm yourself or others. We care about your safety and urge you to seek professional help if you or someone you know is experiencing thoughts of harm or serious depression.

You agree to respect copyright law and refrain from illegally posting copyrighted material on this forum, including medical articles. Click here for copyright guidelines.

All information on DINET?s forums and website is copyrighted. Please contact DINET if you are interested in reprinting anything from the website or forums.


You agree that only medical-related links will be posted on the Dysautonomia Discussion forum.

You agree that links posted on the Chit-Chat forum will not exceed a PG-rating and will not solicit forum members.

Moving, Editing and Deleting Posts

You agree that DINET?s moderating team may move, edit and delete posts, without notice, that do not comply with the forum guidelines, or for any reason deemed appropriate by the administration for the good of our community and its safety. For reader convenience, similar posts may be merged and duplicate posts will be removed.

Doctors and Hospitals

You agree to refrain from making disparaging remarks about hospitals or medical professionals on this forum and to refrain from naming doctors or hospitals when elaborating on negative experiences.

Clarifications: It is fine to make a general statement, such as ?I had a negative experience with Dr. ____ ,? however, per forum rules, statements naming a particular doctor or hospital cannot be defamatory in nature.

Defamatory: ?1. Harmful and often (but not necessarily) untrue; tending to discredit or malign.?

You may elaborate on negative doctor or hospital visits as long as the particular doctor or hospital is not named, and therefore not defamed. Please use your own private email to make statements that name particular doctors or hospitals and are defamatory in nature.

Medical Advice

The content of DINET?s forums is in no way a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and a physician. Please keep in mind that treatments that help one patient may be detrimental to another. Members should never try any new treatment without first obtaining a physician's approval.

Clarification to ?medical advice:? It is okay to suggest someone seek professional medical advice and treatment. It is okay to say that you had a similar situation in which you were treated with x, y, and z medications. However, it is not okay to tell others what to do, such as, ?You should take x, y, and z medications.?

Participation on DINET?s forums signifies that you agree to abstain from giving medical advice to other members.

Respect For Others

A tone of kindness is appreciated in all discussions. You agree, through the use of DINET?s services, that you will not post condescending, defamatory, obscene, offensive, violent, racist, profane or illegal material on this forum. DINET encourages you to use good judgment, but please do not be judgmental in posts.

You agree to refrain from flame wars, debates and the discussion of ?hot topics,? which are likely to provoke debates. (Common hot topics include, but are not limited to, politics, religion and abortion.) Posts dealing with sex-related issues should have a tone of maturity.

DINET?s forum has a built in censor that removes profanity and replaces it with ?****.? Attempts to bypass the censor by the misspelling of inappropriate words will be edited.

Clarification: The following definitions are provided to clarify DINET's forum rules. However, DINET's forum rules are not necessarily limited to these definitions. Definitions are from The American Heritage Dictionary of English Language, Fourth Edition.

Condescending: 1. ?Displaying a patronizingly superior attitude.?

Defamatory: ?To damage the reputation, character, or good name of by slander or libel.?

Obscene: ?1. Offensive to accepted standards of decency or modesty. 2. Inciting lustful feelings; lewd. 3. Repulsive; disgusting.?

Offensive: ?1. Causing anger, displeasure, resentment, or affront. 2. Making an attack. b. Of, relating to, or designed for attack.?

Violent: ?1. Accomplished by force: coercive, forcible. 2. Extreme in degree, strength, or effect: desperate, fierce, furious, intense, terrible, vehement.?

Racist: ?1. The belief that race accounts for differences in human character or ability and that a particular race is superior to others. 2. Discrimination or prejudice based on race.?

Profane: ?1. To treat with irreverence. 2. To put to an improper, unworthy, or degrading use; abuse.?

Illegal: ?1. Prohibited by law. 2. Prohibited by official rules.?

Judgmental: ?1. Of, relating to, or dependent on judgment. 2. Inclined to make judgments, especially moral or personal ones.?

Public Disagreements with Other Members

You agree that if you ever have a disagreement with another forum member you will not attempt to persuade other members to take your side of the argument or publicly post about it on this or any other forum, blog or website. Please be mature and talk to any member you disagree with privately.

Public Disagreements with Administrators, Moderators or Rules

You agree that if you disagree with DINET?s forum rules or the actions of an administrator or moderator you will not publicly post about arguments or disagreements on this or any other forum, blog or website, nor will you attempt to petition administrators or moderators to change policy through posts, polls, email, PM or any other service found within the DINET website. You agree that you will not attempt to persuade other members to take your side in any disagreement with administration, moderators or rules. If you have a disagreement, you may respectfully send an email to DINET?s administration at staff@dinet.org.


DINET does not allow advertisement. This includes, but is not limited to, medical studies, other organizations, products, businesses, websites and forums. If you are a researcher who would like to advertise your medical study, please contact DINET. Use of our forum signifies that you agree not to use any services provided on DINET?s website or forum to solicit others.

Soliciting: ?1. To seek to obtain by persuasion, entreaty, or formal application. 2. To petition persistently; importune. 3. To entice or incite to evil or illegal action. 4. To approach or accost (a person) with an offer of sexual services.?

Further clarifications regarding soliciting: It is okay for you to share your experiences with medical studies as long as you follow forum guidelines. However, it is not okay to suggest members participate in medical studies, or to post information on how members can participate in medical studies.

It is okay to say you are a member of another organization, website or forum. It is okay to say you use a particular business or product. However, it is not okay to use DINET?s forum to recruit members for other organizations, websites or forums. It is not okay to use DINET?s forum to promote businesses or products.

Freedom of Speech?

Although the U.S. Constitution states ?Congress shall make no law abridging the freedom of speech,? DINET is not Congress. Freedom of speech rights do not extend to our privately run forums. The forum rules govern the behaviors and activities of users. If you choose not to follow the rules agreed upon at registration and before posting, the result is a disabling of your account.


If you have any questions, DINET?s administration can always be reached at staff@dinet.org. If you have a question for a specific DINET moderator or administrator, please email your question to that individual instead of posting it on the forum.

The use of these forums is a privilege DINET provides to members. We strive to keep our forums safe and enjoyable for all. You can help keep these forums safe and enjoyable by contacting a moderator or administrator if you have any problems.

Thank you,

DINET?s Moderating Team

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