AJVDK Posted January 25, 2006 Report Share Posted January 25, 2006 Hello All!Sorry I have not been around, but I have been it bed the last 3 days. I don't sure whats going on, but everything hit me at once, from the headaches, to heart raceing to being dizzy......... I called Cleveland, and they finaaly got back to me and we are going to swicth out the amount of mg I take on some of the meds, and then ad flonet?Sp? again. Last time I took it my body retained to much water. Hopfully this time it will work better!I got more disablity paper work in the mail today. It was all the work history, and paper work like what things you can do? So I am going to work on that this weel and get it back to them. I am hoping as is going well so for on it!! ( Please keep this in your thoughts, I really needs this to go though!Does anyone have any ideas on treatment other them meds that work?? I am taking so many I forget somtimes to take them, I am not sure they are working and have not seem to improved. Hopfully the changes will help, but want to keep on the look out for other treatmnets out there. I just want to get better, I want to be able to work again! Maybe thats asking for to much. I know many have it much worse and for that I feel bad, complaining about my life. Sorry for going on and on....Well hope everyone is doing well,and having a great week. I am off to put my oxygen back on and go to bed!Amy Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted January 25, 2006 Report Share Posted January 25, 2006 Hi Amy,The only suggestion i have is to take a peek at the main dinet site http://www.dinet.organd look at the "what helps" section...on that page is info on non-medication treatments.Nina Quote Link to comment Share on other sites More sharing options...
Jacquie802 Posted January 26, 2006 Report Share Posted January 26, 2006 Are you on Florinef????? Or is that another drug used to treat hypotension? Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted January 26, 2006 Report Share Posted January 26, 2006 Jacquie, it looks like Amy is on florinef--the generic name is fludrocortisone, which is listed in her signature. Quote Link to comment Share on other sites More sharing options...
AJVDK Posted January 26, 2006 Author Report Share Posted January 26, 2006 Hi Amy,The only suggestion i have is to take a peek at the main dinet site http://www.dinet.organd look at the "what helps" section...on that page is info on non-medication treatments.Nina Nina,Thanks for the info, I have looked at some of ut, and I have tried alot of them I am just trying of hoping for something to try, or to improve the way I am feeling. The good news is that today was a better day then the last few days hopfully this will continue. Thanks again for the help!Amy Quote Link to comment Share on other sites More sharing options...
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