wareagle Posted January 24, 2006 Report Share Posted January 24, 2006 Without a doubt I'd get rid of this "heavy" feeling I ALWAYS have...It's like every bone in my body is made of steel and the ground is a giant magnet...even when I'm "just sitting" I still have to struggle to remain upright...Oh...it would be sooooo nice if something could make this go away... Quote Link to comment Share on other sites More sharing options...
JaneEyre9 Posted January 24, 2006 Report Share Posted January 24, 2006 Well, i have to agree that getting rid of the fatigue would be so great. But really, what i'd want most would be for other people to magically understand my disabling condition and how i feel. I guess that's not technically the question, but it's my wish Kristen Quote Link to comment Share on other sites More sharing options...
Lukkychrm42 Posted January 24, 2006 Report Share Posted January 24, 2006 Yeah, I can live with the tachy/BP issues- they make me scream, but thankfully I can still function with them. For me, I want to have energy again. I want to not dread having to walk for a block or having to crawl up the stairs on hands and knees because my body is so lethargic that even raising my hand or standing up wears me out. So I'm ready, get out the magic wand! Quote Link to comment Share on other sites More sharing options...
lalalisa Posted January 24, 2006 Report Share Posted January 24, 2006 Good question!For me it would be the extreme fatigue.Lisa Quote Link to comment Share on other sites More sharing options...
Mrs. Glass Posted January 24, 2006 Report Share Posted January 24, 2006 Good post, but for me I really dont know. I really dont want any of them. I really hate the heart problems, but then most of the time I cant think straight so that is very frustrating, and the fatigue is just horrible. I really dont have an answer at this time. maybe when I am feeling a little bit better. I can think clearly enough to answer. Vanessa Quote Link to comment Share on other sites More sharing options...
Guest Julia59 Posted January 24, 2006 Report Share Posted January 24, 2006 Yes, me too---Jan---even though money is short right now---I still would love to window shop. I can still buy the things I need for the most part---we find a way, but doing it is terrible lately. I only last about 20 minutes, if that. One day in 2002 I lasted 5 hours in the mall! That was the year I had the steroids during and after my surgery, and some of the pressure was taken off my spine---but it came back later----ugggg But that is one of the symptoms I figure out a way to manage---it's the hyperadrengic attacks that I want gone---and never to come back again. The second worst is the OI/fatigue/weakness/fluish feeling---wiped out---whatever name fits best I guess.Julie :0) Quote Link to comment Share on other sites More sharing options...
Sunfish Posted January 25, 2006 Report Share Posted January 25, 2006 DEFINITELY my inability to remain upright (including sitting for long periods). i suppose i'm cheating a bit b/c this encompasses lots of things that occur when i'm up too long, i.e. fainting, tachy/brady, some headaches, fatigue, some nausea, etc.when my GI stuff is at it's worst it'd be a close tie but thankfully i can eat - even if not comfortably - these days.when my bladder conked out last year it was/is scary in terms of the progression of things for me but the way i saw it was/is that if that was all that i had wrong i could be back to doing triathlons.... melissa Quote Link to comment Share on other sites More sharing options...
AJVDK Posted January 25, 2006 Report Share Posted January 25, 2006 It would be chest pain!!!Amy Quote Link to comment Share on other sites More sharing options...
katie_b Posted January 25, 2006 Report Share Posted January 25, 2006 I think I would want to get rid of passing out. A tie or close second would be fatigue. I am always tired, but the syncope only happens every few months.That's a tough question! Quote Link to comment Share on other sites More sharing options...
Guest dionna Posted January 26, 2006 Report Share Posted January 26, 2006 i can deal with any pain you want to throw at me, but i can't keep myself from passing out. i do it all the time. over 300 times in the past year and a half. Quote Link to comment Share on other sites More sharing options...
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