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POTS THEN PREGNANCY


Guest Belinda
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Guest Belinda

Well Happy New Year to me..I can't even describe what I am going throug right at this moment or what I went through yesterday.

I guess I better tell my story a little..got sick last year been fightng for a year to figure out that it was POTS,

I have a boyfriend that I have been with for almost 3 yrs. of coming out of nasty divorce(abusive marriage)

and things were perfect was enrolled in nursing school and then I started getting sick last Dec.

Um, I will try and make this short and as underrstandable as possible..I probrably would've gotten emarried if I hadn't gotten sick..maybe still will who knows although I son't like to feel like a burden or charity case.

Um..so heres the kicker..my period was late and so I took a test yesterday and found that I am pregnant oh about 3-4wks. I am so scared I can't even tell you.

I read back posts from before and there are mixed feelings on all of it..but right now I am so scared.

I already have problems with just about every part of my body from spasms,,.s.o.b,coldness, reflux(NO WONDER IT GOT SO BAD),standing for more than 2 min.< Lower GI problems, and now this.

Don't get me wrong we always use protection..I was already terrified and now it can't get anymore worse.

I have no family here right now..and my boyfriend is supportive but leaving everything to me.I don't think I can handle anything more at this point..I have to think about my welfare, the baby's.

I really needed to vent on this..I have been crying ever since yesterday morning..I hope this is not a terible thing to post but I am VERY scared.I will be calling docs. to get their take on this right away. As I know I really can't even take beta-blockers much les anything else I just got put on. My resting heart rate is like 90-125. I could really use some thoughts and prayers right now. Thank you for listening. Belinda

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Hi Belinda,

That is certainly a lot that you must work out right now. You need to do what is right for you. Depending on how you really feel about wanting a baby can also lead you in a direction.

If it were me I would sit down with my boyfriend and really have a heart to heart about how we feel about having a child. Then I would go in and talk to the dr. or drs who are taking care of me and get their take on pregnancy and my situation, what would be the risks, if any to me and/or the baby.

There are some conditions that people actually find gets better during pregnancy. I suffered a lot with palpitations and tachy prior to my pregnancies, during my 1st I had awful reflux, all throughout. My second I had to take meds to stop what they though might be pre-term labor and my third, well I was in bed for about 2 months, felt like 2 years though. I have to say though, all in all, I felt pretty good while I was pregnant. The increased blood volume during the mid pregnancy made me feel pretty well. BUT, that was me.

It is certainly a tough decision, one that you really need your boyfriends support on also.

I'll be thinking of you.

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Belinda, you do not have to justify or explain anything to us. You're pregnant- well, good for you. Of course you will want to find a great oby/gyn ASAP and see what can be done to make this pregnancy as smooth as possible. Some people find that their sxs improve during pregnancy, some find that sxs get worse. Pregnancy was hard on me BUT it was before I had a diagnosis. You have a diagnosis so you are already a step ahead of a lot of people. I can tell you that stress is not good for you or your baby. However, the defense against any disorder (the disorder here is the dysautonomia) is to be knowledgeable and informed. So... read up and make an appointment with an obstetrician. Good luck!

Carmen

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Belinda,

I am so sorry that this scared you so much and of course it does because you didn't want it to happen (at least not right now). And you are in a difficult position with the POTS and everything. BUT: to me it almost sounds like a gift. And you know, when pregnant, your body will probably adjust itself to the pregnancy. Your body will make more blood so that the bloodvolume will increase and there are more things which I forgot right now. Maybe you can pm ethansmom who recently got a baby and is doing good. I'm sure she can give you some advices! I know it is a shock and I know how difficult it is raising kids while having POTS (I have two boys 11 and 14 myself, so I do know what I'm talking about). I think you have to find yourself a good doc to help you through pregnancy and wait and see what happens. Talk to your boyfriend and tell him you need his help, as you can't have a family all by yourself (POTS or no POTS) and take every available help that's possible. It IS possible to have POTS and a baby, it's difficult but when you WANT to you can. I hope you and your boyfriend can make the decision that is best for the two of you!

Best wishes,

Corina

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Hi Belinda, I agree with what everyone has posted above, you and your boyfriend need to talk this out and figure out what is best for you and your baby. Go see your doctors and get their inputs...I know some meds you can't take during pregnancy due to the unknown effects on the baby and so forth. Anyhow, no matter what you and your b/f decide we are all here for you. :D

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I have to agree with everybody else. Say a prayer, Talk it over with boyfriend, talk with ob/gyn. It sounds like a load, but I think it is doable. Is it at all possible that your meds may have altered the test result? I agree the body will adapt to the baby. You are in tmy thoughts and prayers. Such a heavy thought when it should just be joy. Please keep us posted and know we are holding your hand even from far away.:-)

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Guest Belinda

I forgot to mention that I already have 10yr. old and 6yr.old from marriage and that it is hard now for me to take care of them but I do it and I may need to learn better to adjust to the fact I can't be supermom at everything and sometimes I just can't do it..my 6 yr. old goes a lot to his fathers which used to be the other way around but once i got sick it has been hard and now I have started those medicines to help me gain some strength back and WHAM...

I know I will really will need to adjust to having this disorder and knowing my limitations regardless of what happens from now on..I am just scared for all of it.

And i thank you for being here..you'll never know well maybe you do.

And my period was never regular but then certain parts in my upper body started hurting you women know where..and my period was about 1 1/2 wks. late..and I have done 2 tests to confirm.

Of course noone is in docs. offices today..so as to meds.a t this second I don't know what to take and not take at least til I get into the right people.

I am hoping maybe there is some way I can get into Dr.Grubb and get his take on this or something as this is kind of a desperate situation for me now.

Which is why I am torn-up and not really having joy..having pOTS is scary enough.

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Hi Belinda,

I took atenelol throughout my 3rd pregnancy with no problems. I also took Klonopin as needed. Both with the o.k. from ob/gyn. I also took carafate during my first, that was for heartburn. I took a liquid form and that helped for the reflux. I also took my usual allergy meds which were nose sprays and antihistamines. A good ob can help you sort out your meds. I worked for ob/gyn for many years and I have seen many people taking meds throughout their pregnancy. :D

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Belinda,

I can very much understand your situation. I developed POTS just after my first pregnancy and often think about a second, but also have ongoing health problems due to the POTS. I would first try as best as you can to stay calm, because the added stress is not good for the baby. Next, get in touch with a perinatologist to consult on your case. He/she can tell you what you can do to have a successful pregnancy, follow you closely through the process and coordinate your care. Remember that women with past heart attacks and cancer have had babies successfully. I know it may be very difficult, but please talk everything over with your boyfriend and be sure that you are prepared to deal with the outcome of your decision. On the one hand, terminating a pregnancy can cause some people guilt that lasts a lifetime. For others, they feel it is the right thing to do to spare themselves more health problems and the baby possible health issues. In terms of deciding to continue the pregnancy, you may have a totally normal pregnancy, and in fact find that your health improves (mine did). For others, they get much, much sicker. It's really hard to know what's going to happen, but getting the peri consult and also perhaps a cardiology consult will ease your fears.

This forum is not a place for people to judge you. We're all here to help offer advice that might help you make the best decision for yourself. Never be afraid to share your feelings with us. Peace and good luck to you, and keep us posted.

Amy

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Belinda

I think you have gotten excellent advice. I hope you will feel better about making decisions after you talk with your boyfriend and a physician--hopefully a specialist who has the knowledge regarding the risks of taking POTS meds during a pregnancy. As others have said, many POTS patients do actually go into a remission of symptoms during pregnancy, particularly after the 1st trimester.

Let us know how you are doing.

Katherine

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belinda, I felt great throughout my pregnancy (POTs wise that is). I took florinef and zoloft all 9 months and I have a happy, healthy 11 month old daughter! I agree that you should talk it over with your boyfriend and see where he stands. It is a decision that only you can make. You will be in my prayers!

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