goldicedance Posted December 10, 2005 Report Share Posted December 10, 2005 I am trying to find on DINET these two documents. Any help will be greatly appreciated.1 - description written by doctor about what it feels like to live with POTS2 - a guide to living with pots prepared by D. GoldsteinAny suggestions!!???Thanks,Lois Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted December 10, 2005 Report Share Posted December 10, 2005 Lois, I believe the one is by Bell and Streeten...this might help you find ithttp://www.ndrf.org/NDRFHandbook.htmhttp://www.anapsid.org/cnd/diagnosis/hypovolemia.htmland the othe, i think, is from NDRF's handbook on dysautonmiahttp://www.ndrf.org/NDRFHandbook.htmoH, and I think the title of the article is something like "a disease like no other" or "disorder like no other"? Perhaps someone out there has it? If I had to guess, I'd say Sophia's got it somewhere Nina Quote Link to comment Share on other sites More sharing options...
goldicedance Posted December 10, 2005 Author Report Share Posted December 10, 2005 Thanks, Nina. It was the NDRF source. Is that listed on DINET resources? It contains some very interesting information that may help address issues I've read about on POTSPLACe forum.Heck, a 5KM run is a marathon in my book. I can barely make it up the stairs!Lois Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted December 10, 2005 Report Share Posted December 10, 2005 You gave me a good chuckle about my "marathon"! Thanks for keeping your humor, even through the tough year youv'e been through.yes, NDRF's handbook is in the FAQ-help yourself section. Ninais this it?http://www.geocities.com/vitamvas/cfidsnews.htmlor was it the quality of life study by Mayo?http://www.mayoclinicproceedings.com/Abstr...t=Abstract&UID= Quote Link to comment Share on other sites More sharing options...
goldicedance Posted December 11, 2005 Author Report Share Posted December 11, 2005 Nina...The Mayo study wasn't it. Believe it or not, I participated in that survey and the study. Could you find me?Running was never my speed. In 6th grade (many light years back), my class had to round around the playground. Our class was too big to go all at once so the teacher divided us in two. When I came around the finish line, she said I was first in the second group. The honest person I was and still is said that wasn't the case--I was actually the last person in the first group. Oy vey!!! is right!!!Have a good evening and take a break/brake for goodness sake!Lois Quote Link to comment Share on other sites More sharing options...
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