avais1 Posted December 9, 2005 Report Share Posted December 9, 2005 Hello out there For those of you who have constipation and motility problems with your dysautonomia, are any of you on Zelnorm? If so, how has it worked for you? Thanks! Quote Link to comment Share on other sites More sharing options...
bamagirl Posted December 9, 2005 Report Share Posted December 9, 2005 I have delayed gastric emptying and my dr prescribed it for me & all it did was give me the screaming *****!! :0 I stopped taking it right way. Quote Link to comment Share on other sites More sharing options...
Sunfish Posted December 9, 2005 Report Share Posted December 9, 2005 i've taken it since last spring - due to pretty severe gastroparesis & dysmotility from my stomach down - and it does help me some. and for me definitely doesn't speed things up too much. it helped me cross over the bridge from continual weight loss to holding steady; mestinon then helped me start gaining. i haven't had any side effects from the zelnorm either... melissa Quote Link to comment Share on other sites More sharing options...
Stace915 Posted December 9, 2005 Report Share Posted December 9, 2005 I took it for about a year, in the beginning it was really helping and the last few months I was in constant stomach pain, so the doctor recently took me off of it. But it absolutely seemed to work for a while Quote Link to comment Share on other sites More sharing options...
DSM3KIDZ Posted December 9, 2005 Report Share Posted December 9, 2005 I took it for slow gastric emptying and I had major diaherra from 1/2 a tablet. Anyways after a week my doctor told me to stop it.Dayna Quote Link to comment Share on other sites More sharing options...
joanie Posted December 9, 2005 Report Share Posted December 9, 2005 Dr Grubb gave it to my daughter a year ago- it helped tremendously. Then, there was a shortage, and her DR here said there was a black box warning on it and to take her off. Then, when we wanted it back, he said OK, but we had to show she doesn't have long QT. Now, you would have thought if she had that, it would have shown up before. When we went to another Dr. to see if she had it, she said she really had to study the EKG- it wasn't always easy to see. Also, she said it is not uncommon with POTS patients. I really don't understand any of this, but, we are waiting for the results...Joanie Quote Link to comment Share on other sites More sharing options...
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