Sunfish Posted December 9, 2005 Report Share Posted December 9, 2005 so i've been having some not so good new symptoms the past few days. since monday morning non-stop. before that it had happened a few times over the past few months but only for a few hours at a time. now it's not going away. i have pins & needles/tingling/electrical "shocks" of sorts in most all of my body. everywhere but my trunk and my head. i wouldn't call it pain but it is SO uncomfortable. and i'm definitely weaker than my norm....usually my strength is okey dokey. i've had pins & needles & some numbness for a long time now in hands/fingers/toes/feet/calves but never non-stop or to this degree. and my vision is a bit blurry too. something i was pinning on the adderall that i tried recently with no luck but have since stopped with plenty of time for it to be out of my system (but yea, i can eat again ) and yes i've talked to the docs. several of them. my primary wants me to see the neuro who is being a ______ (fill in the blank, made worse by the fact that i originally really liked him). he's now ignoring both me and dr. grubb's letters & phone calls. we did try fluids and it did nothing for me (though at least i have a good outpatient set-up to get them now which doesn't include the ER). dr. grubb thinks my neuropathy may be progressing and bringing on the new symptoms. i was hoping they could be b/c of low B12 which we've recently discovered but no one thinks so. i'm hoping the B12 shots i started will help SOMETHING but i'm definitely frustrated (can you tell?) and the fact that my B12 is so low and my potassium levels keep dropping and other blood levels are semi-low has us wondering about additional GI issues again....possibly celiac.i've had other wacky bloodwork as of late too...high Anion Gap, low CO2, low BUN, some other random things i'm forgetting. i've looked it all up and know that it can all mean lots of things or not much at all since i've never had issues with any of it previously (except for the potassium) the general consensus is that my body isn't too happy in general.dr.g wants to try some new meds for the pins&needles/tingling but we both realize they could make me worse rather than better, especially since my last few med tries have been more than a bit challenging. so he wants me to try to get through the semester first, aka finish up my two papers, which i want to do too but it is SO hard right now as i have a hard time typing or focusing on the computer for any amount of time. this is taking me much more effort to write than my norm as my fingers keep slipping onto the wrong keys.i made it to my last class today and could hardly keep my eyes open in class & was visibly shakey & could hardly get my wheelchair in & out of my car, something i've never had problems with. it was my first time out of my apartment all week other than the IV trip. i may have to take an incomplete in one class b/c the prof isn't sure she can grade my paper on time since it wasn't turned in this week; when i picked up the incomplete form today a support services lady had the audacity to tell me that taking incompletes is a bad thing that only gets people into trouble. as if i WANT to be taking one! and what business is it of hers anyway?? i'm sure some people abuse them, but come on.....i'm fighting SO hard to be doing the school thing at all and if i have one incomplete that will be taken care of long before next semester starts & largely b/c of the technicality of my prof not getting papers graded fast enough (by her own admission) then i don't need a lecture on it.ggggggggrrrrrrrrrrr. ggggggggggggrrrrrrrrrrrrrrr. gggggggggggggggggrrrrrrrrrrrrrrrrrr.and to top it off i found out today that i have to pay the $50,000+ back to the army from my college scholarship obligation that i obviously couldn't/can't fulfill. there's A LOT more to that mess than the money that i won't go into; by no means did i do everything right in the midst of things years back but i really did NOT need to get that notice in the mail today.as much as i'm generally a positive person my body's downslides are not following my mind's determined lead. i'm not having ups and downs and haven't for over a year now...the ups are all but missing. the whole "it can only get better from here" attitude isn't working b/c more times of late when i think things can only get better the opposite has been happening. primarily physically but otherwise as well. and it's getting SOOOOOOOO old.ok. sorry for the lengthy vent. anyone else have such major issues with pins & needles/tingling/shocks body-wide?a very very tired me... melissa Quote Link to comment Share on other sites More sharing options...
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