Jacquie802 Posted December 1, 2005 Report Share Posted December 1, 2005 Hi everyone. This post is basically me venting about this lovely thing we all have...POTS...I hate being negative because I know there are alot of ppl on this board alot worse off, this is just the only place where ppl can truely say they understand. I have lost alot of friends because of this illness. Sometimes I can't really blame them...I usually am never feeling well enough to go out for long periods of time. Eating at restaurants makes me dizzy and lightheaded, w/ palps, etc. you guys know the deal. Forget about going shopping, because that's completely out of the question...Then there's family...just because some days I don't look sick ppl think I'm feeling great. Just yesterday I was told to leave my house, because I am supposively fine and just don't want to do anything. I guess I basically am really good at faking test results (ablations, ttt, heart monitors...)don't ask how, but I guess that is what ppl think. I even had an old friend say I am fine....scary thing is she is premed, definately lacks ppl skills though.Sooo, now I am jumping around staying with relatives day after day with no permanent place to stay. since I can no longer stay at my house. I have applied for disability but that takes a long long time to get on, most likely be denied first time around anyhow. I have gone through what little saving I had and I don't want to borrow anymore money from ppl, esp. since I don't even know when I am going to be able to pay them back....Thanks for anyone who decides to read this whole post. I am thankful for you guys being here, the fact that I do have a family, and thankful for what few friends I have left...I know things could be alot worse...they just really do stink right now. Anyhow thanks again for being here I know there are ppl out there who understand.....Take care guys! Quote Link to comment Share on other sites More sharing options...
Gracefulprincess Posted December 1, 2005 Report Share Posted December 1, 2005 Hey Jacquie, as i was reading your post i realized that i'm in the same "boat" as you are. I totally understand how frustrating it can be. I too am still waiting to hear from disability, i've already been denied medicaid, now i have to appeal it. the reason they denied it was they consider POTS not to be a disability. And what you were saying about friends, family and just people in general is very true. There are many times i feel like crap and for some reason i look fine, so everyone thinks i'm ok and expects me to be ok. Anyway i hope things get better for you! You'll be in my thoughts and prayers! Quote Link to comment Share on other sites More sharing options...
Gena Posted December 1, 2005 Report Share Posted December 1, 2005 I am very sorry you are being treated so unfairly by your friends and family. I know it can be so frustrating that you just want to scream at them. I find it so hard to explain to my family what I go through on a daily basis. I basically gave up trying to get through to them.I just wanted you to know that you are in my thoughts and prayers. I hope your disability comes through sooner than expected or that you find a loving family member or an "angel" out there decides to take you in and help you out as long as you need it.Best wishes and healing thoughts,Gena Quote Link to comment Share on other sites More sharing options...
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