Guest thisblows Posted April 8, 2004 Report Share Posted April 8, 2004 Can you have a negative tilt table test and still have POTS? Quote Link to comment Share on other sites More sharing options...
futurehope Posted April 8, 2004 Report Share Posted April 8, 2004 On more than one occasion I've mentioned to doctors that "I'm having a bad day and my POTS is going to be worse today," and they responded, "Good. We want to see a poor day." My conclusion from those encounters was that they realized you could be having a "good day" (and maybe do all right on the TTT) but they preferred to see a bad day. I took that to mean someone could still have POTS even though they were having a "good day" and managed to do okay on the tilt. Does anyone else have a thought on this? Quote Link to comment Share on other sites More sharing options...
Aprilmarie52 Posted April 8, 2004 Report Share Posted April 8, 2004 yes, it varies from person to person. Maybe you were just having a very good day. Everyone with POTS has unique symptoms. Good luck Quote Link to comment Share on other sites More sharing options...
denabob Posted April 8, 2004 Report Share Posted April 8, 2004 Most definitely! POTS varies from day to day and even though it's rare we do have a good day sometimes.Just like a car problem it acts up until the mechanic is checking it and then it purrs like a kitten! Frustration should have a picture of a POTS patient pictured beside it in the dictionary! Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted April 8, 2004 Report Share Posted April 8, 2004 Yep, the folks who posted above are correct. A tilt table test measures how your body repsonds at a given time...some of us have big fluctuations in how our bodies work from day to day. I "failed" my test miserably, with a more than 70 point rise in HR...and a rise in bp, followed by a leveling off...followed by a drop of more than 80 points in diastolic pressure... all in the first 15 minutes.However, on some days, I can tell you that it might be an immediate rise or drop in pressure (I get BOTH) or it might take up to a half hour. I also have been diagnosed with both POTS and NCS. Nina Quote Link to comment Share on other sites More sharing options...
goldicedance Posted April 8, 2004 Report Share Posted April 8, 2004 Ditto on the above. One factor that seems to aggravate POTS is frequent bathroom trips, especially at night. That really aggravates the condition.I like how doctors say that they would like to see you on a "poor" day. Perhaps if you could get an appointment for that day, it would work! Otherwise, you might have to wait awhile and hopefully for you you are feeling better. Kinda a vicious circle.Keep on plugging! Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.