Sue New Posted November 27, 2005 Report Share Posted November 27, 2005 Hi Everyone I have just joined this message board today but have looked in on occasion in the past.My health history is quite detailed, but in a nutshell I have recently been daignosed with Ehlers Danlos Syndrome (April 2005) although I was diagnosed with Hypermobility Syndrome in 1989 aged 18/19.Dr Hakim from University College London, referred me to Professor Mathias as he suspected I have Autonomic Disturbance and I underwent the tests at Queen Square on Friday. I am awaiting the results, but I know that my deep breathing test produced a "Rare Abnormal Square Wave" response - whatever that means, as the techinician had never seen the response before and had to get someone else in to verify it.Some of the weird and unexplained symptoms I get are flashing lights in my eyes that pulsate in rhythym with my heart beat after minimal exertion, double vision - possibly due to a convergence insufficiency or weak eye muscles, prominent chest veins after minimal exertion, feelings of pressure in my head if I stand up to quick or move suddenly and feelings like I am falling whilst sitting and standing. I am under numerous specialists at my local hospital plus Prof Grahame/Dr Hakim and now Prof Mathias in London.I will keep this introduction short(ish) , but I just wanted to say "Hello", particularly to any fellow UK EDS sufferers who may be members of this board.Take care all Sue. Quote Link to comment Share on other sites More sharing options...
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