Jacquie802 Posted November 19, 2005 Report Share Posted November 19, 2005 Does anyone else notice that after waking up in the a.m.. or taking a nap their symptoms are worse than other parts of the day??? Quote Link to comment Share on other sites More sharing options...
Guest Finrussak Posted November 19, 2005 Report Share Posted November 19, 2005 In case you havent noticed, many of us dont have an "A.M." and we also often joke about needing night jobs...for some reason there seems to be a worsening in mornings and an inmprovement in sx in evenings...For me, ( as for others Ive talked to with dysautonomias and Lyme as well) we feel better late afternoon until the wee hrs...notice all of us who are up late posting??? then again some are up all nite due to racing hearts...maybe a short poll on the time of day we feel best??? its a quick 3 choice thing...After staying up all or most of the nite we try to sleep in...lately due to Lyme flares and dysauto flares ( they go hand inhand) Im up till 4-5 AM and sleep past noon...and from what I have heard Im not alone!!!WHY??? my guess is the daily cycling of neurochemicals are as "off" as our ANS...or adjustments due to meds or even both! Possibly the surges of adrenaline and other neurohormones throw everything else off. And it may even lie within processes in the areas of the brain that are responsible for interpreting diurnal cycles. Quote Link to comment Share on other sites More sharing options...
Mrs. Glass Posted November 19, 2005 Report Share Posted November 19, 2005 (edited) Actually, for me most mornings are the only time that I get any relief. I only sleep about 3 to 4 hours a night, even on sleeping pills. But the normalcy does not last long. Now if I have had a bad night, like waking up gasping for air, then I am terrible all day, but on most days by early afternoon I am shaking all over, and everytime I move I have a dizzy spell from #### I hate to see another day come, because I know that it is just going to be the same or worse than the day before. My only relief seems to be laying down, and then that hurts my back, because of laying most of the time. I will be glad to get back on my meds, so hopefully some of this will let up. VanessaDoes anyone else notice that after waking up in the a.m.. or taking a nap their symptoms are worse than other parts of the day??? Edited November 20, 2005 by Sunfish Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted November 19, 2005 Report Share Posted November 19, 2005 definately worse for me as well - always the dizziest in the morning with gradual improvement - although some days i go back down hill towards the end of the day - or now when i just stay dizzy all day long Quote Link to comment Share on other sites More sharing options...
mariancollins Posted November 20, 2005 Report Share Posted November 20, 2005 hello, and my answers are " yes" and "yes". wishing you all the best. Quote Link to comment Share on other sites More sharing options...
lthomas521 Posted November 20, 2005 Report Share Posted November 20, 2005 Rust never sleeps. And neither do my kidneys. I try to outrun them by drinking water and eating salt during the day. But sooner or later, I have to sleep, and then they catch up. So I feel far worse in the morning than in the afternoon. Quote Link to comment Share on other sites More sharing options...
dawn Posted November 20, 2005 Report Share Posted November 20, 2005 Mornings are always difficult. One neurologist told me at night is when we produce adrenaline. A normal person gets up and moving and they get rid of the adrenaline while ours just keeps circulating in our systems.I usually am still awake at 3:00 AM and sleep til about 10:00. I try to shower before bed.I also take Klonopin at bedtime, my doctor said even if it doesn't help me sleep it gives my nervous system a rest.Hang in there, I know how hard it is.Dawn Quote Link to comment Share on other sites More sharing options...
BallroomA Posted November 20, 2005 Report Share Posted November 20, 2005 I wish I could be like some of you!! I use to be a morning person and night owl before I got sick!!!!! UP at 6 am in bed at 2 am no problem then But now ohhh I wish I could sleep till noon but alas I have college at 9:30 some mornings and I have to be at work by 10 am others....I find I go to bed around 11 or midnight and I wake up with my fiancee' he gets my coffee all ready goes to work at 7:30 am and I snooze till 8:30 or 9. Mornings can be horrid....but then so can afternoons....at night I get really bad headaches sometimes...oh the joys of POTSHOOD Quote Link to comment Share on other sites More sharing options...
Evie Posted November 21, 2005 Report Share Posted November 21, 2005 Yes im worse in the Am too I use to wake up at 11:30 but in the last few months have managed to move to 9:40 and then time change caused that to go to 10:40 and now ive managed to move it back to 9:40-10. My dr was so excited when i told her. One dr told me to get out of bed before 9 and stick my head out of a window to get sun.... great idea in theory but usually if i tried to do that id faint and/or feel car sick. I use to try to sleep through that feeling as it would tend to go at about 11ish. Im not certain what helped me but i think having my bed raised at the head has helped alot. Given i had spent 5 years trying to move my clock back so i could wake earlier and then i put my bed up and now 3 months later i can wake up 2 hours earlier. If you have not tried that it may be worth a shot for you! Quote Link to comment Share on other sites More sharing options...
Jacquie802 Posted November 21, 2005 Author Report Share Posted November 21, 2005 raise the bed??? wouldnt that take blood away from your brain?? how would that help? hmm confused !LOL Quote Link to comment Share on other sites More sharing options...
SunsetParadise49 Posted November 21, 2005 Report Share Posted November 21, 2005 I'm defiantly worse in the morning. But I'm so used to it now!!! Quote Link to comment Share on other sites More sharing options...
Guest Finrussak Posted November 21, 2005 Report Share Posted November 21, 2005 Jacquie,Raising the head of the bed somehow generates a mechanism that results in increased blood volumes. Drs Low and Robertson have articles on this...try a PubMed search. Then you dont have as much the tachy/low BP brain drain which adds to the fatigue.Evie and others,its sometimes easier to move your body clock ahead rather than back; by staying up ever later...its a nuisance because for a few days youre completely reversed in night/day but this seems to go easier. Similar to jet lag being easier to handle in one direction more than the other ( and I never remember if its West to East or East to West thats easiest)Finette Quote Link to comment Share on other sites More sharing options...
Evie Posted November 21, 2005 Report Share Posted November 21, 2005 Jacquie,Raising the head of the bed somehow generates a mechanism that results in increased blood volumes. Drs Low and Robertson have articles on this...try a PubMed search. Then you dont have as much the tachy/low BP brain drain which adds to the fatigue.Evie and others,its sometimes easier to move your body clock ahead rather than back; by staying up ever later...its a nuisance because for a few days youre completely reversed in night/day but this seems to go easier. Similar to jet lag being easier to handle in one direction more than the other ( and I never remember if its West to East or East to West thats easiest)FinetteHi Finette,thanks for the info yeh i tried moving it that way but for some strange reason it didnt seem to matter when i went to bed i would always feel quite sick in the morning. I found it all a bit confusing. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.