ben_uk Posted November 15, 2005 Report Share Posted November 15, 2005 Hi allI went to Professor Mathias a week ago. He said I need to have autonomic testing so it is being arranged.I know some of you have SOB - but does it happen after exertion or can it happen spontaneously? Mine can happen both ways.Also, how severe is it? Mine seems quite severe, last week it took over an hour to catch my breath enough to talk to people.Last night I had a bad episode. I get light headed, my hands feel heavy and my blood pressure drops (it dropped to 73/53 last night)I am quite scared about this.Your comments would be appreciated.ThanksBen Quote Link to comment Share on other sites More sharing options...
hayley Posted November 15, 2005 Report Share Posted November 15, 2005 sorry cant offer any advice.I hope it gets better soon though.take care.H x Quote Link to comment Share on other sites More sharing options...
calypso Posted November 15, 2005 Report Share Posted November 15, 2005 Mine is constant -- it is not dependent on activity level or standing/sitting. I do get a little better when I lie flat, so I think it is certainly autonomic-related.Amy Quote Link to comment Share on other sites More sharing options...
amanda Posted November 15, 2005 Report Share Posted November 15, 2005 I get out of breath and my heart pounds sometimes just walking up the stairs. I hope there is something they can do for you. Quote Link to comment Share on other sites More sharing options...
ben_uk Posted November 15, 2005 Author Report Share Posted November 15, 2005 Thanks for your replies. I doubt very much they can do anything about it as it is neurological.Have any of you had any help or been prescribed something?Ben Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted November 15, 2005 Report Share Posted November 15, 2005 It is very possible that this can be relieved for you, or that it will improve on its own over time. For example, if the cause is low blood volume, you might get some relief by increasing intake of salt and fluids. in any case, try to stay hopeful. POTS is not always disabling--many people improve with medications or just over time. It sounds like you are on the right track and under competent care.Katherine Quote Link to comment Share on other sites More sharing options...
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