Guest Julia59 Posted November 9, 2005 Report Share Posted November 9, 2005 Hi folks---hope you are all having some good days...........if not---well---maybe watch some good movies............ I have to have more testing. The neurosurgeon at the Cleveland Clinic ordered a bone scan with an injection of RO dye-----------don't like the sound of that. From what I understand it takes a long time. He is doing the scan on my neck.Then he would like me to have a flexation/extension x-ray of my neck to check the instability...After that he want's an MRI with contrast of my thoracic spine. I asked him why---and he mentioned someting about my EDS possibly affecting my thoracic spine---???????? Then he would like to see me again on January 23rd. He has sent me to a chronic fatigue/FMS specialist on Dec. 22nd. The date was changed for the 29th to the 22nd---as the CFS Doc won't be there that week.I have never had the contrast for an MRI------Is it bad?........I did OK with a CT scan and the contrast they use for that. I'm having trouble holding my head up----and the muscle on the left feels like it is all twisted--from the base of my skull down to my clavical.I guess my main questions are if anyone had a bone scan before with injection---is it the same radio active dye they put in the Eggs when the do a gastric emptying test? I tolerated that fine. I guess they have to wait for the tracer to get into the bones before the scan is done.I found out that my vitamin D is extremely low---<7---it should be something like 25-55 for the norm. I have been put on prescription vitamin D. I also have to take calcium.I'll be taking omega-3---flax seed oil---(spelling?) for my cholesterol issues. My total is 195----it's more of a ratio problem between the LDL--HDL and triglycerides. My HDL is low---and the LDL is the high end of normal---and the triglycerides are a little high. I won't be taking the Zetia-----way to many side affects for a girl like me. It could put me to bed for a while---as I already have myelopathy----cause still to be determined. The Doc at the Cleveland Clinic thinks I have something more systematic going on. Swallowing is becoming more and more difficult---and I choke alot lately.Julie :0) Quote Link to comment Share on other sites More sharing options...
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