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Posted

I was diagnosed with PoTs originally, my symptoms were fairly classic just racing pulse upon any kind of movement or standing or stress etc. and then it would get pretty stuck and sometimes stay fast for hours or days. They told me all the usual things salt compression socks etc. this completely ruined my life, I went from being a dancer to not even being able to keep fit or walk down the street, I lost my work and home etc. and as most of us probably I went through SO MUCH stress and trauma to be diagnosed and am still waiting for some kind of actual treatment although I’m am trying everything holistically. HOWEVER at one point my symptoms completely changed to BRADYCARDIA and high Bp and bp spikes! Where my pulse would not ever go above 60 even in absolute stress. Now it seems to be periods of tachy and periods of Brady. I can’t see any pattern, unless it is hormonal. They are both equally but differently bad, tachy is awful because it causes me chest and arm pain, sweating, can’t eat or sleep. Brady is not nice either because I feel like I literally cannot move, but I suppose it is preferable to tachy. Makes me very dizzy though. Does anyone else experience BOTH the tachy and Brady? Recently I had shingles on my sciatic nerve (very random) and now the Dysautonomia seems to have regressed back to like the beginning, very fast heart rate and exercise intolerance etc. 

if anyone can relate I would really appreciate having more info. 
thanks 🙏 

Posted

I had tachy Brady syndrome or sick sinus syndrome, also pauses. For me  it was resolved with a pacemaker. Are you seeing an Electrophysiologist —they specialize in heart rhythms. Good luck.

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