DickinsonsMeadow Posted November 23, 2024 Report Posted November 23, 2024 I feel best when I'm reclining, but I've heard too much resting can exacerbate symptoms. I exercise every morning but am mostly sedentary the rest of the day. How do people keep moving through fatigue, nausea/dizziness, and brain fog? Quote
Pistol Posted November 24, 2024 Report Posted November 24, 2024 @DickinsonsMeadow On the days I feel like you describe I unfortunately just have to rest and wait it out, even if it takes days. When I first became ill with dysautonomia I pushed through everything and made myself function despite the symptoms, eventually making the illness much much worse. I find resting a lot but doing short periods of mild exercise ( sitting or reclined ) helps with those symptoms, and avoiding overstimulation. What helps me with the nausea is Zofran and small frequent snacks. Also drinking salty broth helps me a lot. Quote
DickinsonsMeadow Posted December 11, 2024 Author Report Posted December 11, 2024 Thanks, @Pistol! Did meclizine ever help with the dizziness? Quote
Pistol Posted December 11, 2024 Report Posted December 11, 2024 4 hours ago, DickinsonsMeadow said: Did meclizine ever help with the dizziness? I was on that for a short while but it did NOT help ME. But we are all different. In my case the dizziness was caused by rapidly changing BPs - so going on meds for that helped. But dizziness can have many causes, even in dysautonomia. What I had to do is try many meds over years to find the right combo. Hang in there. Quote
DickinsonsMeadow Posted December 28, 2024 Author Report Posted December 28, 2024 Thanks, @Pistol. I finally have a doctor who seems to know what he's talking about. He's a fainting specialist, and even though I don't faint, he's been the most helpful person I've seen so far. Don't want to recommend him yet--just one visit, etc--but he's Dr. Tullo. Heard of him? New Jersey Center for Fainting. He wrote a great article explaining dysautonomia. Quote
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