Intolerance to movement

[Mac]

Please forgive me if this is is the wrong forum or something, I just discovered this site today. I went to a cardiologist recently and they told me to wear a heart monitor because something about the communication in my heart that produces a heart beat is slow, but my heart rate is normal. I'm not sure if that is important but that is one of the things mentioned in my most recent, and first, appointment with her. I have previously had a doctor ask me if I have POTS because my heart rate was at 110 bpm while sitting down. I also have a family history of afib, but I have not been diagnosed with afib, nor am I at the age when my other family members have developed it, I'm like four years off. Recently my heart problems have been getting worse, to the point that simply stretching in bed will make my heart start pounding and I wondered if anyone here know anything that it could be a sign of? I know I should just wait to see my cardiologist next, but I'm a little impatient. If it matters at all the other thing mentioned at my appointment with her is that my mitral valve kind of buckles when it closes, but that it is probably benign. Thanks if you have any helpful information for me!

[bumpkin]

110 heart rate just for sitting up or stretching certainly sounds like orthostatic intolerance. 

Just the first few things that come to mind.. Have they ruled out stuff like neuropathy or underlying diabetes or blood sugar issues, or have you had any bloodwork done that might suggest that you've got thick blood? Sometimes there can be circulation trouble making the heart work harder.

You mention stretching in bed causing your heart to pound, do you have a pulse oximeter or some kind of heart monitor at home to track the difference in heart rate when you go from sitting/standing/laying down during your normal day-to-day?

Also, just asking since it's not clear from your post, are you able to do much regular activity in general, or has this got you off your feet? There are times when I'll notice the POTS symptoms come on worse if I've been resting for too long and haven't gotten up and moved around some, usually resolves if I walk around the house a bit. But a lot of people with this condition also suffer from stuff like ME/CFS and their bar for physical exertion is much much lower, so engaging in even minimal exercise may not always be as easy as it sounds. 

[Mac]

I've gotten bloodwork done before to check certain hormone levels of mine, and one time got bloodwork to make sure I was safe for surgery, but I'm not sure that any of those have shown whether or not I have thick blood. I haven't talked with any of my doctors about neuropathy, I don't seem to have any reason to think I might have diabetes or other blood sugar problems. I don't have a pulse oximeter, I usually do the thing of counting your pulse for half a minute and multiplying by two. I do tend to lay around a lot, but I also do scootering almost daily, and I go to school so there are times when I have to walk around a bit. I don't have ME/CFS, I think my fatigue just comes from my low testosterone levels, but I haven't seen my endocrinologist yet. Thank you for responding!

[bumpkin]

Oh ok, np, it might be helpful to check with your endocrinologist about what options there are for getting the testosterone up to optimal levels, and could also see what they make of the POTS type heart symptoms since hormones def tend to play a role there (and if cardiology doesn't find much, then it's more likely something out of balance elsewhere)