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Posted

 As a seasoned, disabled POTS sufferer I have learned how to deal with the symptoms, set backs and frustrations of this condition. The first years were terrible, but after 15 years of dealing with the uncertainties I have come to accept my limitations and celebrate the small victories. Flares especially brought me to my knees - every time I thought I have things under control something triggers the sudden and scary worsening of symptoms that literally could send me to bed for days and even weeks. Every single time it was like getting it for the first time. 

 Eventually I learned that every flare will for sure end and things will go back to normal. It has become a reality of living with POTS. These days I simply drink water, eat a pickle, do what I can and wait for the flare to be over. And every time it does end. 

 Recently I had one of those days ( you know what I am talking about ) when everything just goes wrong. Bad news, broken appliances, unexpected bills, death of a pet ... whatever it is but it seems to just never end. We just find ourselves sitting on the couch bawling, head in our hands, thinking: " I cant take no more, will this ever end? " And then I realized something. I know how to deal with this. It is nothing different then what I already know from POTS: wait it out, one day at a time, it WILL get better. 

 So I drank water, ate a pickle and did whatever I could. And guess what - that bad day is now history, I got over it. 

The morale of the story is: every bad time in our lives will eventually be over, and we will be happy again. Just don't run out of pickles. 

 

Posted

I so agree.  I was diagnosed 21 years ago.  I have been fortunate to have many months or even years of feeling well.  Unfortunately I get flare ups and usually when I get them they are bad.  I am disabled and often bedridden.  Each flare up is a little different, with the common theme of severe fatigue and wacky heart rates and bp.  Over the years I have also learned to accept the down days and weeks along with the "normal" days--and remember no state lasts for long--and also that I really do not have control.  My last bad flare up was about 10 weeks.  Other than extra fluids and salt and IV fluids nothing else really helped much except time.

It does take time and experience to learn "this too shall pass".  

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