Sea otter Posted March 24, 2023 Report Share Posted March 24, 2023 Anyone with POTS checked histamine level? I know POTS can be connected with MCAS. But I also know some people that checked histamine level and it was fine, and they have a lot of reactions after they eat. So probably for them this is all "POTS fault". Quote Link to comment Share on other sites More sharing options...
Pistol Posted March 25, 2023 Report Share Posted March 25, 2023 @Sea otter Histamine dilates blood vessels, so it will make POTS worse. There are certain foods that make things worse for me, but even if I just have a stuffy nose or an insect bite I will flare, more or less. Spring is a high-allergen season, so my symptoms usually get worse in the spring. Quote Link to comment Share on other sites More sharing options...
Sea otter Posted March 25, 2023 Author Report Share Posted March 25, 2023 @Pistol Thanks. Have you ever checked histamine level in blood? There are also certain foods that make things worse for me. But it's interesting that when I feel better that food doesn't bother me so much. Then everything is better and easier. Quote Link to comment Share on other sites More sharing options...
Pistol Posted March 26, 2023 Report Share Posted March 26, 2023 @Sea otter Years ago I had testing for MCAS ( which I do not have, thankfully ) and they tested histamines, which were OK if I remember correctly. Quote Link to comment Share on other sites More sharing options...
Sea otter Posted March 26, 2023 Author Report Share Posted March 26, 2023 @Pistol thanks for answer. I am glad your tests were ok. Quote Link to comment Share on other sites More sharing options...
MikeO Posted March 26, 2023 Report Share Posted March 26, 2023 6 hours ago, Sea otter said: @Pistol thanks for answer. I am glad your tests were ok. So are you going to ask for a histamine test? I did a food allergy panel came up negative (not epipen worthy) but clinic did cite food intolerance. Quote Link to comment Share on other sites More sharing options...
Sea otter Posted March 26, 2023 Author Report Share Posted March 26, 2023 1 hour ago, MikeO said: So are you going to ask for a histamine test? I did a food allergy panel came up negative (not epipen worthy) but clinic did cite food intolerance. I don't know yet. I would like to rule out MCAS, but the thing is that I have to do bloodwork privately and then hope I will find doctor that knows something about POTS and MCAS relations - of course, depends of results. I am not sure that kind of doctor in my country exist. 😂 Quote Link to comment Share on other sites More sharing options...
MikeO Posted March 26, 2023 Report Share Posted March 26, 2023 3 hours ago, Sea otter said: I don't know yet. I would like to rule out MCAS, but the thing is that I have to do bloodwork privately and then hope I will find doctor that knows something about POTS and MCAS relations - of course, depends of results. I am not sure that kind of doctor in my country exist. 😂 MCAS IMO can be a bit of a shoot to be diagnosed with at least in my state. From what i have read is more complicated than just a easy simple blood test. If one has a bad food allergy like a peanut allergy and balloons up would be a easy call but out side of that from what i know will take a baseline blood test and then a flare blood test. sure i have posted the tests on Dinet before. Anyways more to think about. What has helped me is to keep my carbs down and i avoid the nightshade foods and if i feel ill with a food i will take it off my menu and see how it goes. Quote Link to comment Share on other sites More sharing options...
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