Sea otter Posted January 26, 2023 Report Share Posted January 26, 2023 Someone have this symptom - left side of the face red? Feels like it's burning on the inside. It is present usually when I have flare, but there is no rule, sometimes I wake up in the morning with left side of the face red. Don't ask me if I have MCAS, because I don't know. 😊 I only know I have POTS.  Quote Link to comment Share on other sites More sharing options...
Stardust Posted March 15, 2023 Report Share Posted March 15, 2023 I have this on my right cheek! I often wake up that way too. It's so weird. I haven't been diagnosed yet but POTS and MCAS are both things I was already planning to bring up to my doctor. Quote Link to comment Share on other sites More sharing options...
Sea otter Posted March 16, 2023 Author Report Share Posted March 16, 2023 13 hours ago, Stardust said: I have this on my right cheek! I often wake up that way too. It's so weird. I haven't been diagnosed yet but POTS and MCAS are both things I was already planning to bring up to my doctor. Thanks for your response. I also checked on POTS facebook groups and a lot of people have some kind of flushing on face or other body parts. Seems it is common. Quote Link to comment Share on other sites More sharing options...
Stardust Posted March 16, 2023 Report Share Posted March 16, 2023 3 hours ago, Sea otter said: Thanks for your response. I also checked on POTS facebook groups and a lot of people have some kind of flushing on face or other body parts. Seems it is common. It's so weird though! People always ask what's wrong lol Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted March 19, 2023 Report Share Posted March 19, 2023 I was just checking to see whether there had been a lecture on this topic at the Dysautonomia International conferences over the years, but I can’t see one. You could send an email suggesting dermatological autonomic symptoms as a topic for the next conference. info@DysautonomiaInternational.org I did this about another topic recently and received a nice acknowledgment. Quote Link to comment Share on other sites More sharing options...
Sea otter Posted March 19, 2023 Author Report Share Posted March 19, 2023 15 minutes ago, Sarah Tee said: I was just checking to see whether there had been a lecture on this topic at the Dysautonomia International conferences over the years, but I can’t see one. You could send an email suggesting dermatological autonomic symptoms as a topic for the next conference. info@DysautonomiaInternational.org I did this about another topic recently and received a nice acknowledgment. Wow, thanks a lot! I think I already sent them email for this and some other symptoms I have, but they told me this could be MCAS related and to find immunologist. Quote Link to comment Share on other sites More sharing options...
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